Hear my update on @vivianfried - she is #superwoman
Vivian Fried -my wife- has end stage renal disease. She entered end-stage on January 3, 2014 when she was found catatonic on the floor of our home by her caregiver.
She needs a donor and we need help with expenses.
Vivian is registered with Renewal a spiritual group based in New York that helps living donors with the transplantation process. They use New York Presbyterian (NYP) Hospital and Jackson Memorial's Miami Transplant Institute (MTI).
If you want to volunteer to be a donor please email R1125@renewal.org to get the process started.
Vivian is ALWAYS upbeat and positive! Check out her Facebook feed by clicking this link--- http://bit.ly/VivianFriedFacebook
She is CONSTANTLY sending me positive affirmations via Facebook Messenger -even while I am building this page.
Vivian has not urinated for over a year months. She needs colonics just to move her bowels. She is becoming bloated and has dialysis 6 days a week.
She has not been able to work for 4 years - placing a significant strain on the family finances.
Jim is in a transitional period in his career adding even more strain!
Vivian has been fighting a strong battle- but it is hard and full of disappointments.
Many people have volunteered to be tested and two potential donors have stepped forward that were matches.
The first donor waited for 18 months before she changed her mind.
We found another matching donor – via Twitter. This donor was deemed unsuitable after failing a secondary test.
We continue our search for a matching donor MTI or NYP will accept.
Please email R1125@renewal.org to help today!
Once Vivian is transplanted the financial strain of her continuing absence from the work force will combine with Jim needing to be off of work to care for her for 8 – 12 weeks will put a tremendous additional financial strain on the family.
To ensure Jim and Vivian’s health and financial situation make it through this incredibly tough time, we welcome all donations and prayers.
We are seeking to raise $150,000 at this point. We hope this will be enough to help ensure Vivian's quality of life and care for her. Costs that insurance does not cover.
Any little bit helps!
Thank you all for taking the time to read Vivian's story and joining her team!
Thank you to all of those folks that have given gifts recently. It really means a lot to us!
Vivian continues to have a great recovery! The kidney is working great! Her skin is clearing up and her energy is slowly returning!
Thank you all for the love and support!
Vivian and Betty: On the Road to Recovery
My wife Vivian’s kidney transplant story has gone global. We’ve gotten calls and messages from all over the world from people who have been following our relentless search for a kidney donor.
And now they’re following Vivian’s story of recovery. Thanks to G-d and Betty Demartini, the incredibly gracious donor, Vivian’s successful transplant surgery is about a month behind us.
Many of you have asked about how she’s doing. In short, she is doing great. She is resting, and the kidney is performing well. We are going to follow-up appointments, and we’ve been able to reduce her anti-rejection medication. We’re finally starting to make plans for the future.
Betty is on the mend, as well, and we look forward to seeing her again as soon as possible.
To learn more about living kidney donation, email email@example.com or call me at 305-773-6300. You can also visit the website of the Miami Transplant Institute.
You can help us – and Betty – financially by visiting https://fundly.com/vivian-fried-kidney-transplant.
Grace and mercy pave road to kidney transplant recovery
Well, the kidney transplant is complete, and the healing has begun.
Four years to the day that my wife Vivian was found unresponsive on the floor of our apartment, she received the gift of life from a complete stranger who wanted to be faithful to G-d and His calling.
Betty Demartini, a Realtor in Aventura, stepped up and embodied the very definition of grace and mercy by donating a kidney to Vivian after she nearly lost her life in the quest to be thin.
A former model, Vivian’s body-image issues got the best of her. She, unfortunately, started using diet pills, diuretics and laxatives to maintain her physique as the years went by.
The price was high. Her kidney’s failed. For more than 1,200 days, Vivian went to dialysis every sunrise. A 15-inch needle was inserted into the port in her arm. She was given caffeine and her blood was chilled just to maintain her blood pressure.
Basically, it was a near-death experience every time.
Betty knew Vivian’s pain all too well. Her own aunt died of kidney failure before Betty had the chance to donate.
That set inside Betty a resolve to help someone.
And help she did. Thank the Lord she decided to help us. She found us after a Google search led her to our Craigslist ad. A special thanks to Chaya Lipschitz (http://kidneymitzvah.com) for putting that ad together for us.
Click here to see Vivian and Betty meet for the first time.
Now, Betty hasn’t done any of this for prestige or recognition. It was hard for us to even get her to appear on TV. For her, it’s about bringing G-d’s grace to the world.
In fact, she actually helped two people receive a life-giving transplant. We had a donor lined up in New York, and we were going to travel there for the procedure. The financial burden on us would have been staggering. Betty’s presence here in Miami just added to the blessing, and our New York donor followed through and donated to another person.
One decision. Two lives saved.
People ask what kept us going these past four years. What motivated me was Vivian. What motivated Vivian was me. We simply were not going to give up on each other.
But it’s easy to talk about being resilient. The fact is, you can’t be resilient alone. You need a community to help you bear the burden – physical, financial and emotional.
Words fail me when I try to express the thanks and gratitude I feel for everyone who has upheld me and Vivian throughout this odyssey. There are so many of you – both inside and outside the real estate community.
Without you, we never would have made it.
Vivian is on the road to recovery, but there are so many who aren’t. They still need the gift of life that only a kidney transplant can provide.
Click here to listen to our story, and then seriously consider the impact you can have through living kidney donation. To learn more, email firstname.lastname@example.org or call me at 305-773-6300.
You can also help us – and Betty – financially by visiting https://fundly.com/vivian-fried-kidney-transplant.
To the awesome doctors and staff at Jackson Memorial Hospital and Miami Transplant Institute, the words “thank you” will never be enough.
And to Betty Demartini, you are one beautiful, spiritual, loving human being. Vivian and I are your friends for life.
Transplant results are amazing - the kidney is pumping like crazy - all initial tests are good! pls consider helping us via the fund - many have asked if it is still open - yes it is - dollars being used for Vivian Fried ' s meds - insurance doesn't cover them all - and to help support Betty Demartini in her recovery as well.
thank you all for your support!
here is the link to #showvivlove --- http://bit.ly/HELPVIVNOW
here is the link to the WPLG Local 10 / Local10.com interview - http://bit.ly/VivianandBetty
Vivian has had good success with the transplant so far - but she is still adjusting to her new kidney and has been in a lot of post-surgical discomfort. I hope to have her home tonight but no guarantees. It is a complex process with a lifetime of treatment and medication ahead. But we are truly blessed by Betty Dimartini – the person that donated a kidney to Vivian without even knowing her.
We are ready to begin the next phase of that journey.
Thank you for all the kind wishes and messages.
Many have asked how they can show their love and support and help us.
Please do not send flowers – Vivian cannot have flowers due to the anti-rejection medications
You can help by going to Viv’s Fundly page: http://bit.ly/HELPVIVNOW --- we will use the funds for things like:
• Pay for Vivian’s living donor’s
a. lost wages while she can’t work – 6-8 weeks
b. home health help – 1-2 week
• Some of @vivianFried 's expenses I need help right now with include:
a. a nurse for Viv when she gets home
b. Delivered/Pre-made meals while Viv can’t cook
c. Home cleaning help
Once again – Without you this miracle would have never happened -thank you so much for all your support during this process.
just got the news - we meet the donor tomorrow- setting it up today!!!Stay tuned - very exciting - if you would like to help us help the donor - she will miss 6-8 weeks of work and needs some home help the first couple of weeks - please fell free to donate on Vivian's page - thank you all as always -
For me, 2017 was laser-focused on only one goal: Finding a living kidney donor for my wife Vivian Fried.
Our situation during the year went from urgent to practically desperate. Vivian took care of herself and dutifully went to dialysis six days a week, but time was running out. Her body would not take much more.
Then, through the miracle of social media, one thing led to another. God willing, we've found a wonderful, beautiful woman in Miami who is ready to provide the life-giving kidney donation.
Vivian's transplant is set for Jan. 2, four years to the day that she was found unresponsive on the floor of our apartment.
In those four years, at least 500,000 people have interacted with my messages on Facebook, Linkedin and Twitter.
Dozens of people volunteered to be tested. Only 15 people matched due to Vivian's rare blood type. Many went through the entire qualification process, but none made it to the finish line.
Until now. A precious gift is here, and not a moment too soon.
I will always remember 2017 for the awareness we created surrounding kidney disease and living kidney donation. And for the many, many friends who have supported us financially and spiritually as we've walked this difficult road.
We are so looking forward to getting on with life. We're even planning the trips we haven't taken for years, possibly including one to Atlanta for my Mom's 80th birthday. Many thanks to Richard Stacey and the folks at Victoria Nursing and Rehabilitation for taking care of Mom after her recent auto accident.
Truthfully, wherever I go with Vivian after her recovery is going to be special. It will be terrific to see her unleash all of her pent-up love and happiness onto the world.
You know, the fact is Vivian has been the one to keep me going these past four years. She has not missed a single dialysis treatment in that time, and the strength she has demonstrated has been nothing short of amazing.
I am so proud of her!
When this is all over - that is, when Vivian's health is finally restored - the two of us are going to write a book and take our story on the road. We'll use our story to help as many people as possible through the deep water that kidney disease brings into a life.
Thank you, thank you, thank you to everyone - there are so many of you - who have supported Vivian and me during the last four years. We absolutely could not have made it without you.
God bless you!
VIVIAN’S TRANSPLANT IN NEW YORK HAS BEEN CANCELLED!!!
Because my Facebook ads reached a person I do not know that lives in Brooklyn. She reached out to another person I have never met in Brooklyn. The second person placed and add on Craig’s list in Miami seeking a volunteer donor for @vivianFried . A kind, loving spiritual, Miami based woman we have never met responded.
Yesterday, while I prepared our apartment for us to begin to return (we are still living in temporary housing post Irma) and as I made arrangements to have my mother admitted to a rehab facility following her auto accident over the weekend - I learned that the Miami based donor was fully cleared and Vivian is now scheduled to be transplanted at the Miami Transplant Institute.
All of our prayers have been answered!!!!!!!
Yes – the story gets more amazing every day.
Details will follow as this Holiday Miracle story continues to unfold.
We love you all – thank you for your continuing love and support!!!
Last night one of @vivianfried 's worst. She woke up at 3 am tossing and turning. But 3:15 she was throwing up. At about 4 she came back to bed and asked me to hold her – like she was the Torah. Of course, I did. Until she fell back to sleep. I pray that the donor follows through – we have had over a dozen commit and many had set a date for surgery. But they all cancelled at the last minute.
I truly pray that this is the one. Not sure how long Viv can go on like this no matter how strong and positive she remains.
Yesterday and last night were hard on @vivianfried - she is really retaining water even with dialysis.
But - a miracle is on the way. We are scheduled to receive a kidney transplant at New York Presbyterian Hospital (Cornell) on January 2, 2018 thanks to the efforts of Renewal! Yesterday, the hospital told us to report for final testing on December 19. The potential donor is a holy man that teaches day school to young children.
After insurance initially denied the procedure - over Thanksgiving week - we got final insurance approval at 3 PM on Wednesday before Thanksgiving. While covered by insurance NYP is out of network and we will have a sizeable bill at the end of the process. We also will need to live in New York for 6+ weeks under the best-case scenario.
We are undeterred about the financial issues and positive this will all work out. Thank you for your continuing support - STAY TUNED FOR MORE GOOD NEWS!
Thanksgiving was not easy - our hero @vivianfried gets weaker. We went over to some friends for dinner but had to leave earlier than we wanted. Working to get transplant donors tested and cleared. Hoping to be back in our home by the end of this week
We love you all! #showvivlove
Last night I was blessed to provide emotional support to @vivianfried. She woke up at 4AM in pain. I held her and kissed her till she went back to sleep. We really need that #kidneytransplant ! She remains positive and upbeat but she continues to decline - email R1125@renewal.org for info on how you can help save her life.
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