Jack has reached his goal because of all of YOU! Whether you have supported him in the past or present, we appreciate all of the kindness and generosity! Campaign open till 8-6!
Jack got bored in the big kids OxyCamp room so he went in to help with the babies!!
Jack is raising $ to attend the annual chILD conference. He has reached his goal!! There are some that still want to donate so we will keep this open. We have been urged to "reach for the stars"! And so we will!! We have experienced so much "paying it forward" lately and it is simply magical. From both sides. Each time we hold one of these, I end up simply in awe of people, their hearts and their generosity!
For the past two years Jack and his family have attended this annual conference. This year it will only be Mom, Jack and Dean. The conference is attended by all of the doctors that specialize in these lung diseases and many of the families that are affected by same. The conference gives kids like Jack a chance to see kids just like himself and feel "normal". It is also a great chance for the siblings of these chronically ill children to make connections with others siblings, going through the same things.Jack and his brothers actually look forward to going to this conference every year and have made many friends. Jack especially has made some special friends that he has leaned on during the year when things get especially rough. This year also marks the chILD foundations tenth anniversary and also the retirement of Dr. Leland Fan. Jack has flown to Texas and to Colorado to see Dr. Fan, it is his mothers opinion that Dr. Fan saved Jack's life. Fundraising is not easy and very humbling.Please consider making a donation to help us get Jack out to this conference in Colorado.
All money raised will go toward the expenses of traveling to the conference. In the event that any extra monies are raised, they will go toward the chILD foundation and to Jack's medical expenses. To learn more about the chILD foundation please look here: http://www.child-foundation.com As some of you may know that follow Jack's page, he has had to go back to being inpatient once a month for his IVIG infusions. A medication that is nicknamed "liquid gold" because of how expensive it is.To learn more about Jack and his medical journey please feel free to read his caringbridge page http://www.caringbridge.org/visit/jackpullman1
Thank you for taking the time to read this, sharing our mission, making a donation or just sending some positive thoughts our way!
Jack Pullman & Family
P.S. Would like to share a positive note. From one of Jack's earlier campaigns for one of his diseases EE, many of you may have already recieved my news about this and thank you's, but the money raised for this disease via the CURED foundation actually helped Cincinnati Children's Hospital find the CAUSE of this disease!! It is amazing. Now, they can work on the cure. CURED has given millions of dollars to research this disease. Just goes to show that with the money and the research any disease has a chance to be cured!!
We arrived Thursday in Denver, Colorado for the tenth annual chILD conference. A few of us lung moms met up, the boys, of course had to try out the pool.
In the lobby, Jack spied a group of NFL refs all dressed up with their badges and RINGS on headed out to ref the football game. He talked them up, tried on some ten year and Superbowl rings and actually told one ref about his illness. The pic is of him and of one of the refs. Was amusing.
Jack's oxygen wasn't delivered until midnight (glitches) and he was really hurting at this altitude for some reason, he is usually able to tolerate it. So after it finally arrived, we were able to call it a night.
Today was the first real day of the conference and it was full of many speakers and tons of information. The kids get to go to what they call OxyCampKids.
The most amazing part is connecting with these other parents and the families. There is a picnic tonight.
I will also post a couple of other pictures.
So sorry, but a glitch with Fundly won't let me send this to just my donors, but still wanted to send an update to all those that helped get Jack here! Every year we all come away with so much! Thanks again!
A page from Jack's caringbridge journal....
Sorry, but you will get a daily thank you for four more days...we are so very lucky and grateful!! I am also so happy that Megan has decided to join us and come to the conference. I know how hard it is for her to leave Noah behind (see Noah's Angels on FB) but he would be able to make the long journey and the altitude. Jack is so excited to see these "lung" friends, because they get it. At his age he just doesn't want anyone to even know he is sick. (a story I will share on his caring bridge). Yesterday, I mentioned something about paying it forward, my kids have learned it through family life and the fundraisers Jack has done, beginning with the one originally for the Umass infusion unit. (another story to be shared on Caringbridge) but I am so happy that my kids don't take it all for granted. Thanks again to everyone. The picture today is of Megan and Noah. Jack loves Noah and always picks out these special things to bring him. Last visit, he gave Noah a racetrack that he could use right on his bed. His mom sent pictures of him using it with a huge smile! Jack was beaming. Did I say thank you already?
Wanted to add this picture of the amazing Dr. Fan. He is the leading doctor in pediatric interstitial lung diseases. He is a mentor to so many pediatric pulmonary doctors that specialize in this disease. He is one so very kind, humble and is always willing to take your call or email! Jack has travelled to Texas and Colorado to see Dr. Fan. Dr. Fan saved Jack's life. He is retiring and this conference is also a big tribute/retirement gala for him. Which is why I am so glad to be able to be a part of this.
Thanks again for making this happen for us!! My boys see how many people have helped now and in the past and have learned to pay it forward...I see them do special things every week and it is amazing to witness as a mom!! Alot of our lung kids (including Jack) are getting "sick" this week with different things. Please, if you are willing, say a prayer that none of our kids get really ill and can't make it. That plus that the altitude is not good. Thank you again to everyone!! This pic is of Jack and his medical twin Michael from Nebraska! Who threatened his mom "I'm telling you now that if Jack is not going, I'm not either!"
Jack has reached his original goal!! So amazing and it is only because of all of you!! Many personal messages will be coming later. Thank you just doesn't seem like enough right now. Fundraising is so hard, humbling and many of you have fundraising fatigue. Any extra funds that are raised will go directly to Jack's medical expenses and to the chILD foundation (which funds research for pediatric interstitial lung diseases). Thank you again and we will keep you all updated.
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