Support Richard's Cancer Journey

Support Richard's Cancer Journey

From Elizabeth Kivari

My brother Richard is a year into his cancer journey. We are hoping to take a trip to return to Prince Rupert in the spring and with the holidays coming up I'm hoping to relieve some of his financial burden.

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Update #3

9 days ago

So my brother has his MRI Wednesday night (December 4) and we saw his oncologist on Thursday (December 5). Unfortunaley the news wasnt good. The tumor has grown again. This means Richard will be going on daily low dose chemo from now on. It means another anti nausea medicine and being even more tired than he is now.

Hopefully the tumor will be slowed or even halted by the chemo but the chances aren't great (less than 25% I think).

Thank you so much for the support everyone has shown. There are 2 weeks left in the campaign and we are 25% to the goal. If we are going to try to make the trip to Prince Rupert to experience some of our childhood it will need to be sooner than later.

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In October of 2018 (just days after his 34th birthday) we found out there had been a resurgence of the brain tumor Richard had removed 3 years prior. This was the first time he had gone 12 months between MRI scans as all the other scans had been clear.

After brain surgery to remove the new growth we waited to find out what this new tumor was.

 His first tumor was a grade 1 (the lowest) Ganglioglioma (benign and slow growing). In November 2018 the results came back as a grade 4 (the worst) Glioblastoma (cancerous and fast growing). Glioblastoma carries an approximate 14 month survival time. He has age and general health on his side so we are hoping he will defy the odds.

With this terrifying diagnosis (which is the same Gord Downie had) a treatment plan of 30 days of radiation and 6 months of chemotherapy was enacted. Radiation took place over December/January which made Christmas tough. 

So Richard lost a strange portion of his hair (which I don't have a picture of) and acquired a cat (which was something he has always wanted) and diabetes (from continuously being on the steroid to reduce inflammation). 

He ended up with water on the brain in the spring of 2019. This was probably the scariest time period. He underwent more surgery to place a shunt from his head, down his neck, under his collar bone to drain into his abdomen.

He is done his cancer treatments for now and the tumor responded the way the doctors were hoping but unfortunately this doesn't really change the prognosis. We continue to hope he will be one of the lucky few who survive past the 18 month mark.

He spends much of his time sleeping or resting but is generally in good spirits. We, as a family, now go to trivia every week and Richard, mom and I even did a Brooklyn Nine-Nine (tv show) theme trivia night.

Richard doesn't have any major bucket list items other than to basically do whatever he wants for however long he is able. He is on CPP disability but there is still a financial burden on him and my parents. 

We are hoping to take a trip to Prince Rupert in the spring since we have not been there since leaving in 1995 (not sure this is the correct year). I have no idea whether he will be healthy enough then but that is our tentative plan.

As we reach the one year anniversary of his cancer diagnosis and the holidays approach once again I'm hoping to help relieve Richard of some of his financial burden for the coming months and allow him to enjoy whatever is left of his life.

Written by Elizabeth Kivari (Pretty), Richard's sister

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Elizabeth Kivari posted a new update:
9 days ago

Update #3

So my brother has his MRI Wednesday night (December 4) and we saw his oncologist on Thursday (December 5). Unfortunaley the news wasnt good. The tumor has grown again. This means Richard will be going on daily low dose chemo from now on. It means another anti nausea medicine and being even more tired than he is now.

Hopefully the tumor will be slowed or even halted by the chemo but the chances aren't great (less than 25% I think).

Thank you so much for the support everyone has shown. There are 2 weeks left in the campaign and we are 25% to the goal. If we are going to try to make the trip to Prince Rupert to experience some of our childhood it will need to be sooner than later.

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Elizabeth Kivari posted a new update:
about 1 month ago

Update #2

We've hit 10% of our goal! Thank you everyone who has donated so far. To those who have been having issues getting your donation, I'm currently working with Fundly to figure out why some are going through and some are not.

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Elizabeth Kivari posted a new update:
about 1 month ago

Update #1

If you have donated and it's not showing up on the donation page yet please be patient. As long as the donation appears on your credit card statement it has been "settled and completed" and can take 24 to 48 hours to show up on the donor page.
If it's been more than 2 days and it appears on your credit card statement but not the donor page please contact me on facebook or by email at happytrout23@gmail.com
Please enjoy the latest picture of Samus (my brother's cat) Richard sent me.

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