When I was 5 months old I was diagnosed with Shwachman Diamond Syndrome which primarily effects my bone marrow, white blood cells and pancreas. It is a rare genetic disorder and when I asked our Hematologist what we can do to help, she said bluntly, "Money" to fund research. It is a relatively new gene mutation classified in 2001 and there has been so much progress in the relatively short amount of time, I feel a breakthrough is coming soon. I am raising money to support the foundations that support SDS and most importantly fund research grants that are looking for a cure for SDS. Your donations will go to the SDS Foundation http://www.shwachman-diamond.org/ that supports the research grants searching for a cure. $25,000 is a lofty goal, it represents the value of a grant and my parents will work hard to fundraise in different ways to make it. If you are able to donate or just spread my cause, THANK YOU! - love emma
For updates and progress check out my blog: http://www.caringbridge.org/visit/emmasheataylor
Can’t donate? Please share. Even a quick share on Facebook can help.
The average share raises $97.
Looking to raise money?