I'm raising money to help cover the cost of surgery and travel out of state for my daughter's surgery that is needed on her clubfeet. She was born with Complex/ Atypical Clubfoot affecting both feet.
Sophia was born with a complex case of clubfoot affecting both of her feet. She was treated at 19 days old with stretching and casts that went from the top of her thighs to the tips of her toes. Casts are changed weekly and more stretching and manipulation occurs. Sophia's doctor mentioned her having a more difficult case of clubfoot but we continued on with treatment. When Sophia was 6 weeks old, she was placed under general anesthesia and both of her heel cords were clipped surgically. The doctor placed plaster casts on her to keep her feet in place and those remained for 3 weeks. During this time, Sophia was very uncomfortable and in pain. Her casts often "slipped". The doctor was not happy with the progress of treatment and decided to keep attempting to stretch Sophia's feet further. Weekly casts were again applied. The doctor then assured me that it was time for another heel cord clip. So, at 13 weeks old, Sophia AGAIN underwent general anesthesia and the same procedure was done. This time, Sophia struggled to "bounce back". She ended up dehydrated and on IVs because she was not eating and had been crying in pain for hours. Within days of this procedure, Sophia's casts again were slipping down her legs. I cannot imagine the pain that she must have felt during this time. It was absolutely heartbreaking. Sophia was ultimately treated by a doctor in Iowa City who was able to get her feet in a much better position and he diagnosed her as having Complex Clubfoot which requires specific manipulation and treatment. Sadly, I found out that this happens TOO often with babies. Sophia wore an ankle and foot brace for five years. She is now six years old and her feet are in need of further treatment. Due to the repeated procedures and mistreatment, she now needs to have scar tissue removed in her feet and her heel cords need lengthened. This will require 3 sets of casts to stretch her prior to surgery and then non weight bearing casts for 4 weeks after surgery. She will be wheel chair bound during this time. The treatment will take place in St. Louis which will require travel and time off of work. She currently has state funded medicaid and not all of the costs will be covered because of it being out of state insurance. My hope is to get this surgery this summer of 2020 so that she can go back to school in the fall ready to take on 2nd grade!
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