Melanie's Marathon

Melanie's Marathon

From Melanie's Marathon

US Pain Foundation's Pediatric Pain Warrior Program

Lauren Dickens

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Event Details

Location

Virtually, Middletown CT 06457

Date & Time

Saturday, October 31 2020

12:00 AM

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Kids living with chronic pain conditions endure pain, fatigue, and are faced with overcoming obstacles every day.  Simple tasks such as getting out of bed, showering, making it through an entire school day can all prove challenging.  When they start each day they don’t know if they will be walking, rolling, or using crutches/canes to participate in these routine activities; but they do know they will do the best they can.  Most people take for granted their ability to complete these daily activities.  For our pain warriors it is truly like running a marathon!

The U.S. Pain Foundation is encouraging our pain warriors to get out and move.  By setting My Marathon movement goals, ALL abilities can be included and personal goals can be achieved. 

Because marathons are 26.2 miles, we are asking our pain warriors to do 26 movement activities. Whether they are participating in physical therapy, walking, swimming or attending a sport/exercise program, we challenge them to participate, to the best of their abilities, for 26 days. The possibilities are endless. Each child's chronic pain journey is different, making each child's My Marathon movement goal unique!

Funds raised for the Pediatric Pain Warrior Program, will help create forums and events including special retreats for our pediatric pain warriors and their families.  The program provides opportunities to  connect and find support as well as cultivate public awareness of chronic pain by sharing stories and information.

"Attending the Pediatric Pain Warrior retreats (San Antonio, Chicago and Virtual)  has given us hope.  It has allowed us to form connections with people who can empathize with our pain because they're going through the same thing.  The program, and all it has to offer, has made us realize we are not alone."  Reagan and Knox (pediatric pain warriors) Texas

"My favorite thing about being at the retreat in Orlando and Chicago was just being able to participate in activities surrounded by people (other kids) who understand why you might be walking one day and needing a wheelchair the next.  They never question it."  Cameron (pediatric pain warrior) Wisconsin

"My daughter and I are so grateful to have joined the Pediatric Pain Warriors virtual retreat this year.  We have both learned so much from the webinars and have found support through all the different zoom calls they are offering.  We both have made life long friends that are supportive and understanding with what we go through on a daily basis.  We have finally found our "tribe"." Debbie (mother of a pediatric pain warrior) Florida

The My Marathon Fundraiser will kick-off Sept 1 in recognition of National Pain Awareness Month.  

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Lauren Dickens posted a new update:
3 months ago

Update #1

we are posting Melanie's Marathon in hopes of gaining support for continuation of US Pain's Pediatric Pain Warrior programs. The isolation, heartache, and confusion faced by families dealing with a pediatric pain condition is huge. We know first hand from the dark early years of Melanie's CRPS diagnosis. The friendships, networking, and ability to have some days where just being kids becomes the great equalizer makes Ped Pain Warriors invaluable!
Please give if you can. Melanie's so empowered by sharing her journey and guiding so many kids who are enduring the same struggles she's lived through. Your donation really matters

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Kids living with chronic pain conditions endure pain, fatigue, and are faced with overcoming obstacles every day.  Simple tasks such as getting out of bed, showering, making it through an entire school day can all prove challenging.  When they start each day they don’t know if they will be walking, rolling, or using crutches/canes to participate in these routine activities; but they do know they will do the best they can.  Most people take for granted their ability to complete these daily activities.  For our pain warriors it is truly like running a marathon!

The U.S. Pain Foundation is encouraging our pain warriors to get out and move.  By setting My Marathon movement goals, ALL abilities can be included and personal goals can be achieved. 

Because marathons are 26.2 miles, we are asking our pain warriors to do 26 movement activities such as 26 minutes of physical therapy for 26 days, walking/swimming what they are able for 26 days or attending a sport/exercise program for 26 days.  The possibilities are endless.   Each child's chronic pain journey is different, making each child's My Marathon movement goal unique!  

Funds raised for the Pediatric Pain Warrior Program, will help create forums and events including special retreats for our pediatric pain warriors and their families.  The program provides opportunities to  connect and find support as well as cultivate public awareness of chronic pain by sharing stories and information.

"Attending the Pediatric Pain Warrior retreats (San Antonio, Chicago and Virtual)  has given us hope.  It has allowed us to form connections with people who can empathize with our pain because they're going through the same thing.  The program and all it has to offer has made us realize we are not alone."  Reagan and Knox (pediatric pain warriors) Texas

"My favorite thing about being at the retreat in Orlando and Chicago was just being able to participate in activities surrounded by people (other kids) who understand why you might be walking one day and needing a wheelchair the next.  They never question it."  Cameron (pediatric pain warrior) Wisconsin

"My daughter and I are so grateful to have joined the Pediatric Pain Warriors virtual retreat this year.  We have both learned so much from the webinars and have found support through all the different zoom calls they are offering.  We both have made life long friends that are supportive and understanding with what we go through on a daily basis.  We have finally found our "tribe"." Debbie (mother of a pediatric pain warrior) Florida

The My Marathon Fundraiser will kick-off Sept 1 in recognition of National Pain Awareness Month.