I am supporting my disabled brother, who has NPH and desperately needs your donations .Marks disability prevents him from working and donations are needed for a truck to provide transportation before winter comes.
less than 22 hours to #givingtuesday. I am really excited
1.Imagine not remembering.
2.Imagine paying for your groceries and then leaving them at the store.
3.Imagine listening to your doctor consultation and forgetting it the moment you walk out the door.
4.Imagine you not owing someone money but they told you, you did and you paid them.
5.Imagine having to walk everywhere you go at the age of 54 in the middle of winter.
Its frustrating when someone you love has medical issues that medicine will not cure. Spending a day with Mark is like listening to a repeated broken record in which he will repeat what he has told you at least 3 times until he may remember he told you that or you have repeated to him he already told you that. He is on disability for just that reason and can not hold a job, even if it is a repetitious job as he can not remember if he did that even if it was moments ago.
My brother Mark has what physicians call normal pressure hydrocephalus (NPH) a condition caused by the buildup of cerebrospinal fluid (fluid typically found in the spinal cord and brain) primarily in the brain's ventricles. Hydrocephalus, in fact, means "water on the brain."The fluid buildup occurs when there is a block in the flow or absorption of the cerebrospinal fluid. Often, despite the fluid buildup, there is little or no increase in the pressure inside the skull, thus the name "normal" pressure hydrocephalus. These are the issues my brother Mark faces on a day to day basis.
There are three symptoms of NPH :
#1 The earliest symptom is a change in walking and gait (leg movement and stride) or a feeling that one’s feet are stuck to the floor. Your balance may be poor, and you may walk with a wide, slow step.
#2 Urinary frequency or : You may have trouble with leaking urine or feeling like you have to go to the bathroom frequently. You may not be able to make it to the bathroom in time.
#3 Cognitive changes: People with NPH show some symptoms of dementia, such as confusion, short-term memory loss and behavioral changes.
The prognosis varies with NPH. Early diagnosis is imperative. While some individuals don’t improve much with shunt placement, others make almost a full recovery if NPH is diagnosed and treated early. Typically, the walking gait of the individual is the first to improve, and the cognitive functioning is the last to improve, if it does. Unfortunately, his was not caught early enough and the damage cannot be undone.
My father, who passed in 2014. God Bless him, he took care of my brother Mark for years and although Mark can live on his own, He needs help with obtaining something to drive,. Mark has been putting away 100.00 a month for 7 months now and is a long way from reaching his goal of buying a truck so he does not have to walk every where, help with all his medical issues, remembering appointments, groceries, clothes shopping, your basic everyday needs. These places are not close to where he lives and walking seems to be getting harder and harder for him which is part of his disability. I live 20 minutes from him. It doesn't seem far unless you are making trips in for a job and then attending to his constant needs. He forgets to get a phone card and I can not get ahold of him, he than misses appointments, and everyday its something new. The vehicle or moving him closer to me- one or the other would be perfect. I can not do all this on my own and your donations would be used in that manner.
It is my goal to purchase a dependable vehicle for Mark to get around in before winter arrives. The winters can be brutal in ND so walking is out of the question. It is essential to Marks well-being and my determination that I succeed in my efforts to attain my goal. I hope that you will consider making this fundraiser a success possible with a generous and much appreciated donation. It is vital that I succeed before winter sets in, here in North Dakota
Your compassion and donation will enrich his life in more ways than you will ever know. Please find it in your heart to donate for my cause and help me give my brother a special Christmas that he will NEVER EVER FORGET!.
We are so grateful for your support.With your help I can attain my goal and we can be rewarded knowing we did our part.
Helping one person at a time because it feels right.
Yours faithfully and God Bless,
Head of Fundraising
Check out #GivingTuesday’s storytelling contest, #MyGivingStory! Share your story about what inspires you to give to [your org]. Winners will be awarded $2,500-10K grants, & your story could be featured on GivingTuesday.org http://bit.ly/2fM4SJp Less than a month until #GivingTuesday! This November we’re encouraging everyone to reflect upon why they give. Submit your personal giving story on #MyGivingStory. Share what inspires you to give to [your org] and we could both win this #GivingTuesday.
Subject: #GivingTuesday Contest: You Could Win a $10K Grant for Sharing Your Giving Story
Dear , This November and December, the GivingTuesday movement is running #MyGivingStory, a new storytelling contest that will highlight acts of generosity that may take place out of the public spotlight. They are asking individuals across the country to share their personal reasons for giving, and then share those stories with their communities. As a supporter of [your org], we’d be honored if you would take this opportunity to reflect upon your commitment to our work. The nonprofit they write about in their essay will receive $2,500-10,000 grants.
How to Enter #MyGivingStory • Go to the contest entry form (http://bit.ly/2fM4SJp) or visit the #MyGivingStory tab on #GivingTuesday’s Facebook page. • Post a short essay (150- 600 words) responding to the question, “What inspires you to give?” • In it, tell the story of a specific instance in which you supported a nonprofit organization in a way that was meaningful to you. • Submit your story by December 31st • Share and promote your submission on social media with #MyGivingStory and #GivingTuesday.
Changing campaign title and wording to attract more potential donors. Researching other campaigns for ideas. Trying to make my idea work to help my brother. I am not going to give up hope because I know when the time is right, good will come.
I started this campaign a couple days ago to help my brother with difficult issues he is facing on a day to day basis which to a normal functioning person are just simple no brainer tasks a person deals with without even thinking. I guess I am a little disappointed in the dollar amount and of only seeing one person contribute. Maybe I picked a bad time to start this with Thanksgiving and Christmas right around the corner, but I am going to give an update on the prognosis and let you in on a little secret. I never told him I was doing this so it is going to be a surprise and I am keeping my spirits up and if it takes a lot longer than I expected than that's ok and I am truly grateful for any and all contributors. This coming Friday is Veterans Day so I would like to thank all the different military personnel for their service to our country. I have a lot of respect for those who have served and are serving now. Please everyone show your green light in honor of all those men and woman who in my mind deserve the respect and dignity of knowing they serve for the United States of America. God Bless EACH AND EVRYONE OF YOU. !!!!!!!
Can’t donate? Please share. Even a quick share on Facebook can help.
The average share raises $97.
Looking to raise money?