Maddison Chase Pack

Maddison Chase Pack

From Rachel Mihal

Maddison has been diagnosed with a rare genetic disorder called Jeunes Syndrome. Her rib cage is smaller than normal restricting her lungs from fully expanding when she breathes.

Support this campaign

Subscribe to follow campaign updates!

Recent Updates

Update #6

over 3 years ago

I haven't done an update in a while for our wonderful supporters so I just wanted to let you all know that Maddie continues to do well while on her home ventilator and was transferred from the NICU to a step down! Still no definite word on when she will be home so please keep her in your thoughts and prayers as her BIG three months is less than a week away. Thank you all for your continuous support and donations as the campaign nears its last two weeks:)

More Info

Hello I am sharing this story on behalf of my best friend Megan and her angel Maddison. 

About 10 months ago Megan couldn't be more excited to share the news that her and her husband Jacob were expecting their first baby! After multiple check ups everything seemed to be going perfectly until Megan went to determine the sex of her little one. During her ultrasound, the technician seemed concerned and informed Megan that she believed the baby may have clubbed feet but also informed her of what she had been looking forward to for months.. that she was having a little girl. Flooded with fear and confusion what all did this mean? Was it something more serious? Megan's doctor advised her to see a specialist to rule out diagnosis's such as downs syndrome & spina bifida. The news that came next though was even less expected. Her baby didn't have clubbed feet, her spine and brain looked fine... but her arms, legs and chest were measuring small in proportion to her head, presenting with a form of skeletal dysplasia which might be fatal if her chest was too small restricting proper lung growth.

Megan was shocked, devastated and heartbroken. The doctors gave her the option to terminate her pregnancy but Megan refused to give up on her daughter even if she had a 1% chance to live. The months that followed were full of uncertainty and stress but Megan fought through them. 

October 31st Maddison Chase Pack was born 7lbs 8oz but quiet. Maddison was immediately rushed to the NICU with large amounts of fluid in her lungs. Having to be intubated for the first week of her life the doctors voiced much concern about Maddison surviving, being what should be the most joyful times of a Mothers life,  one of the worst Megan has ever had to go through. 

Maddison was finally transferred to Childrens hospital where she has proven she is a fighter. Maddison has since gone from being intubated on a ventilator to a CPAP machine and is now using oxygen to help inflate her lungs. But she continues to work extremely hard to breathe resulting in an elevated blood pressure, burning many calories and expending most of her energy.

Through much discussion with doctors, Maddison's next step is to have a tracheostomy. This will help her with her breathing, feeding and will help to FINALLY get her home after spending her first Halloween, Thanksgiving and most likely Christmas in the hospital. Maddison will be under sedation for a 5-7 days after her surgery and Megan and her family will have to have in depth training to learn to properly care for Maddison while she has this device for what may possibly be years.  Being diagnosed with Juenes, Maddison will continue to have a long battle ahead of her including the possibility of extensive surgery that she may have to travel to have, and continue to have until she reaches maturity to help with her small rib cage and allow for her lungs to grow . The funds raised in this campaign will go towards the treatment needed to provide Maddison with the most normal life possible and the medical costs that her family will face for the years to come. 

Campaign Wall

Join the Conversation

Sign in with your Facebook account or

Help Rachel raise $7,000 by making a donation.

Rachel Mihal posted a new update:
over 3 years ago

Update #6

I haven't done an update in a while for our wonderful supporters so I just wanted to let you all know that Maddie continues to do well while on her home ventilator and was transferred from the NICU to a step down! Still no definite word on when she will be home so please keep her in your thoughts and prayers as her BIG three months is less than a week away. Thank you all for your continuous support and donations as the campaign nears its last two weeks:)

Join the Conversation

Sign in with your Facebook account or

Rachel Mihal posted a new update:
over 3 years ago

Mobile update

Wishing all of our supporters a wonderful NYE, miss Maddie a happy two months, & Megan and Jacob a happy 1 year anniversary! Much love!

Join the Conversation

Sign in with your Facebook account or

Rachel Mihal posted a new update:
over 3 years ago

Update #4

Just wanted to send another thanks to everyone who has supported, donated, shared kind words and made this campaign so successful in just the few days that it has been active! Maddie is doing well post op and continues to prove that she is a little fighter! Please feel free to keep sharing while the campaign is open.

Join the Conversation

Sign in with your Facebook account or

Rachel Mihal posted a new update:
over 3 years ago

Mobile update

Maddie did very well during her tracheostomy and will be sedated for the next few days while she heals. Thank you for all of the prayers<3

Join the Conversation

Sign in with your Facebook account or

Rachel Mihal posted a new update:
over 3 years ago

Mobile update

Thank you to everyone who has generously donated today. Please keep Maddison in your prayers tonight and tomorrow as she heads into surgery.

Join the Conversation

Sign in with your Facebook account or

Rachel Mihal posted a new update:
over 3 years ago

Mobile update

This campaign supports my best friend and her beautiful daughter. Please feel free to share

Join the Conversation

Sign in with your Facebook account or