McIntyre-Brewer Medical Fund

McIntyre-Brewer Medical Fund

From Deleted User

In 2005, Lorelei McIntyre Brewer, was born missing half of her heart. Her condition is known as hypoplastic left heart syndrome and there is no cure. Lorelei became very sick and her heart stopped. She had emergency...

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Update #2

3 months ago

Hi all. It's been a while and we were hoping we wouldn't need to do more updates for quite some time, but unfortunately- here we are. Lorelei came home after going into septic shock and is slowly gaining back her strength. Unfortunately, she's having issues with the leads on her pacer and has to go through a series of steroids to try and control the scar tissue building up between her one remaining ventricle and the leads. Most likely, she'll need another heart surgery to have the pacer leads replaced with ones that screw (instead of stitch) into the ventricle and are infused with steroids.

On top of that, the bills are mounting for us. For those who do not know, Lorelei's little brother, Killian, has autism, and her older brother, Cavan, has been having serious adjustment issues relating to having a sister with chronic/critical health conditions and is in a therapeutic setting to help him.

We've been fighting to stay afloat and it is becoming harder and harder. It's never easy to reach out to the community, but in this case, I think we need to. The amount of stress and debt is overwhelming and we are not spendthrift people in the least.

Steve and I are so drained. We just want what is healthiest for the kids and the switch to Humana for Tricare has been devastating to our family and required that we enlist the help of Senator Bob Casey's office (who are fantastic, but just as frustrated with the situation.)

Thank you for reading this far. :( We've always tried to be the family who serves others and now we're finding ourselves needing the support more than ever.

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Michelle McIntyre-Brewer posted a new update:
3 months ago

Update #2

Hi all. It's been a while and we were hoping we wouldn't need to do more updates for quite some time, but unfortunately- here we are. Lorelei came home after going into septic shock and is slowly gaining back her strength. Unfortunately, she's having issues with the leads on her pacer and has to go through a series of steroids to try and control the scar tissue building up between her one remaining ventricle and the leads. Most likely, she'll need another heart surgery to have the pacer leads replaced with ones that screw (instead of stitch) into the ventricle and are infused with steroids.

On top of that, the bills are mounting for us. For those who do not know, Lorelei's little brother, Killian, has autism, and her older brother, Cavan, has been having serious adjustment issues relating to having a sister with chronic/critical health conditions and is in a therapeutic setting to help him.

We've been fighting to stay afloat and it is becoming harder and harder. It's never easy to reach out to the community, but in this case, I think we need to. The amount of stress and debt is overwhelming and we are not spendthrift people in the least.

Steve and I are so drained. We just want what is healthiest for the kids and the switch to Humana for Tricare has been devastating to our family and required that we enlist the help of Senator Bob Casey's office (who are fantastic, but just as frustrated with the situation.)

Thank you for reading this far. :( We've always tried to be the family who serves others and now we're finding ourselves needing the support more than ever.

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Michelle McIntyre-Brewer posted a new update:
5 months ago

Update #1

Lorelei is still in the PICU at Hershey Medical Center. Right now the doctors are monitoring her kidneys and left lung. Unfortunately, the antibiotics used to treat her sepsis and diuretics used to treat the lung that is filled with fluid is putting stress on her kidneys, which have already had a tough ride with all of the other surgeries Lorelei has had for her heart. She is still on forced air to stabilize her saturation levels and push air into her lung to help force the fluid out, along with several other respiratory therapies.

Thank you for your continued support of this family.

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