I’m raising money to catch up on bills after being very ill and missing work. I’ve incurred some bills from MRI testing + regular bills, and am under the care of a neurologist. Visits with my PCP are now more frequent.
So the good news is that I don’t have anything life threatening, however at times I’m completely debilitated. I have double vision (diplopia) migraines/ cluster headaches, fatigue, muscle aches, joint pain that comes and goes, night sweats, bruising. I’m now on medication to prevent my headaches, but I still get them. I’ve had so many tests done and I still don’t have a solid diagnosis. I’m very grateful that I have such great health care and my providers are so diligent, however I have more testing in August. Anything that can be raised will be helpful. I’ve missed a total of nearly three weeks of work since my symptoms began. As a single mom this is taking its toll. I often struggle to plan day trips or activities for my family and on good days when I’m able to get out and enjoy the outdoors I struggle with executive functioning. One of the many tests I underwent was a neuro- psychological test that actually pointed that out. My executive functioning skills are extremely depleted. However no diagnosis of Alzheimer’s or dementia. I often struggle to complete my daily chores and choose between going outside when I’m feeling well and staying in to clean. Sometimes I have headaches so bad that I can barely make it to the bathroom never mind work.
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