Joy for Joey

Joy for Joey

From Joy for Joey

Joey has a very rare cancer called Poorly Differentiated Ovarian Neoplasm w/ Neuro-endo feat & needs our help to get a genome test done

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Update #7

almost 2 years ago

Thanks to everyone's support and continued efforts to bring Joy to Joey, we have been able to hit the 12,000 mark! When we first heard about Joeys financial hurdles with not being able to afford the genome test, we said how much does she need to pay for the test with the focus on raising enough funds to get the genome test done; which was completed in under 48 hours!! Yahee. However now she is faced with the continued battle to find alternative medical options, other clinical trials etc that has led us to extend this page to be open for another 6 weeks to allow for supporters and donors to help support her continued battle with the medical costs etc. If you have already supported Joey with the genome test goal, we thank you and ask if you can to share the Joy for Joey page with friends and family that would like to help support her current and future medical expenses. Also If you havent done so already a joy for Joey Facebook page has been created which is updated daily with Joeys medical status, needs, and of course funny smiley pictures!
Thank you to everyone who has helped spread some joy for Joey!! This past week and half in which Joey has been in the hospital has been one of the best weeks yet because of all the love, prayer and support from all of you. If you have any questions in regards to where the funds are going, or if you have any resources you care to share please post those on the facebook Joy for Joey page or call Rachelle at 818 324 4737.

More Info

Joy For Joey =)

 

The definition of Joy is:

  1. A feeling of great pleasure and happiness.
  2. A thing that causes joy.

JOEY = JOY with her huge smile and ability to continue fighting cancer.

We've created this site to help give some Joy back to Joey. Joy for Joey is a fundraising and support page for all friends, family, strangers, and well wishers to help support a wonderful, beautiful, brave, strong, and determined woman known as Joey. RIGHT now Joey is praying for a way to pay for a special genome sequence test to allow her to hopefully qualify as a candidate for another clinical trial in San Diego or at City of Hope Memorial. This test would help identify key markers in fighting her rare cancer.  Insurance does not cover this expensive test and her doctors have told her to begin to get her affairs in order. Lets help get Joey this test and into this crucial clinical Trial!!

JOEYS BATTLE ~

In April of 2011 Joey ended up in the ER because of gallstones.  Through a holistic diet she tried to control her biliary colic attacks.  

Later that year in January 2012 after having endured numerous tests to figure out why Joey had such severe abdominal pains, thinking it was gallstones or maybe appendicitis an ultra sound revealed a tumor on Joeys Ovary 7 inches big, the size of a baby's head.  That night her right ovary was removed. 

On April fools 2012, the doctor came in and told her the bad news about the ovary-baby whom she named Luisa.  She had cells that were not benign but not to worry, it is curable.  Calling/texting her friends on April fool’s day informing them she had cancer went really well.  After 2 weeks of recovery on Friday the 13th, more bad news.  It is not the cancer that everyone had "hoped for."  It turns out it is a very rare cancer called Poorly Differentiated Ovarian Neoplasm with Neuro-endocrine features. Only 300 other cases in the world.  Joey is Stage 3. 

A lot has happen since the first session over 16 months ago which consisted of the first round of chemo which was six cycles of Cisplatin and Etoposide every 3 weeks. She started in July and ended in September, two tumors grew. At MD Anderson they did four rounds of 4 more drugs CycloPHOSPHAMIDE, Bleomycin, DOXOrubicin, and VinBLAStine every 3 weeks; two tumors grew so Joey stopped chemo. In January, Joey started a clinical trial at City of Hope for Brentuximab, she stopped after 2 cycles because 4 more tumors have grown and the original 2 had grown significantly. Joey is now radiating all 6 tumors; three are in the lymph nodes. Microscopic cells were found in the abdominal liquids but thankfully no tumors on any organs. No signs of spreading, tumors are confined to one area around the bladder so we are blasting them. It's not the cure but it will buy us some time for more clinical trials to pop up.

  In Joey’s words, “This journey has been a wonderful one. I am slowly coming to terms with life and death. I am learning how peaceful death can be. The one thing I am struggling with is Faith. I cannot seem to find "God" or a higher being. I talked to my psychologist today and brought up God. I said I don't see any signs of him or her existing or any types of spirit for that matter and feel like I am failing in life. She said what if "God" is not a thing or a person but a feeling? I have found inner peace, love for myself, and clarity. I see the world for what it really is and hold all of its beauty in my heart. I have slowly begun to feel this for the past year. If god is a feeling and a state of being then God has been with me during my times of struggle. A divine heart and peaceful soul is what I believe God is.... for now. Not quite following any religion but I love the feeling of a higher self and excited to see what else I find in this journey. I do have Faith in you my friends and family. I know the love I have for you guys is the strongest feeling I have ever felt in my life. It's powerful and I know that that love will pull me through anything even on my last breath on my deathbed. Heres to Life and Love.” 

Joey is that Joy to many of us who have been lucky enough to call her a friend, team mate, companion, sibling, cousin, or even someone whom we have only heard her story. Her determination to beat this cancer is matched by all the strength and support from all of you, so THANK YOU for visiting reading, supporting and donating to Joy for Joey.  Please visit her caringbridge page to read more about her battle with cancer and her journey.

http://www.caringbridge.org/visit/joeyhernandez

 

Ways to give:

1)      Financially:

Through our fundly page or at State Sprints July 27th 2013 at Leadbetter beach in Santa Barbara CA

2)      In Prayer: Pray for the complete healing of Joanna Hernandez

     Pray for strength and encouragement for her family

3)      Sharing is Caring

-          Posting a link to fundly.com/joyforjoey on your personal website, Facebook,   Twitter, Instagram, Tumblr, or other social network

-          Asking your church, Bible study group, Temple, or friends and family   to partner with you in praying for Joey and to stay informed by visiting: fundly.com/joyforjoey

4)      Encouragement:

 Due to the intensive treatment Joey will be undergoing, there is often a delay in receiving packages or letters. However, if you would like to send a personal note or card, please mail to:

Joey Hernandez

401 East Victoria Street Apt 6

Santa Barbara, CA 93101

 

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Joy for Joey posted a new update:
almost 2 years ago

Joey's Medical status & Fundraising update!

Thanks to everyone's support and continued efforts to bring Joy to Joey, we have been able to hit the 12,000 mark! When we first heard about Joeys financial hurdles with not being able to afford the genome test, we said how much does she need to pay for the test with the focus on raising enough funds to get the genome test done; which was completed in under 48 hours!! Yahee. However now she is faced with the continued battle to find alternative medical options, other clinical trials etc that has led us to extend this page to be open for another 6 weeks to allow for supporters and donors to help support her continued battle with the medical costs etc. If you have already supported Joey with the genome test goal, we thank you and ask if you can to share the Joy for Joey page with friends and family that would like to help support her current and future medical expenses. Also If you havent done so already a joy for Joey Facebook page has been created which is updated daily with Joeys medical status, needs, and of course funny smiley pictures!
Thank you to everyone who has helped spread some joy for Joey!! This past week and half in which Joey has been in the hospital has been one of the best weeks yet because of all the love, prayer and support from all of you. If you have any questions in regards to where the funds are going, or if you have any resources you care to share please post those on the facebook Joy for Joey page or call Rachelle at 818 324 4737.

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Joy for Joey posted a new update:
about 2 years ago

WOW! we are almost at our goal!!

Words can not express how appreciative Joey is from all of your support! I am visiting her this evening and we will make sure to get a happy dance on video =) Thank you all for giving Joey hope, strength, love and support throughout her journey. We will keep you posted on how she is doing and the status of the clinical trial in the week to come!
Love
Joy For Joey

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Joy for Joey posted a new update:
about 2 years ago

Unbelievable support and love ! Genome Test Update!

Thank you so much for everyones support, love and hope! I spoke with Joey and her dear friend Graham today and here is an update on whats going on and where things stand with the genome test and clinical trials.
Joeys doctors had biopsies that had been taken in the past of her cancer.
A little over two weeks ago it became clear that a full genome test would be needed in order to know which clinical trials would be the best fit for her.
They delayed this sequencing because her stupid insurance would not approve it. When her doctors here found out there was a hang up, they called and had the test done without insurance approval and when Joey heard about how much money we have raised was relieved to know that this crazy bill was going to hopefully be covered 100% when she gets it by all of us!
Yesterday having received so much support from all of you, your prayers,well wishes and financial support the genome test was completed with the following:
Yesterday the two markers were identified. And now the process of finding the perfect clinical trial for her can begin!
She is scheduled to see DR Rosen at UCLA on August 1st based on the genome results, but she should not be bed-ridden at that point because many of the clinical trials require potential participants to be up and moving around.
So lets all get jiggy with it and get her moving towards making it into the clinical trial next week!. She really does so much better when her friends are around. Yesterday she got out of bed and danced! Lets keep visiting her. Keep making her laugh. Keep telling her you love her. Send funny pictures of yourself doing funny things in her honor and if you have any silly music tracks, youtube videos, etc you want us to play for her I will happily be the messenger.
We are so close to Joeys goal! I'm confident that we have and continue to bring Joy to Joey and this financial gift from us to her will help her get that much closer to beating this cancer and making her battle with it just a little bit easier by knowing that we have her back with this genome medical and trial expenses.

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Joy for Joey posted a new update:
about 2 years ago

Because of your support we are well on our way!

Thank you to everyone who helped Joy for Joey get our first day going! That includes friends who have shared the link and made donations! Joey couldn't do this without you and all of your love. Because of your gift we are spreading the hope and Joy for Joey that she CAN get this genome test and to keep fighting!

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Joy for Joey posted a new update:
about 2 years ago

27% Funded!

I spoke to Joey this morning and told her how we have already raised 27% of what she needs. She said how she is feeling stronger today and as long as she can walk herself through the hospital doors to get the genome test done she is good to go! She is very grateful for everyone's generosity and was beyond words. I told her we could get her a pair of Heelie shoes that have roller blades on the heel and skate her in style to receiving this genome test! Lets continue to spread the word, pray for her and send her lots of love and energy!

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Joy for Joey posted a new update:
about 2 years ago

Joey Update 7-23-13

I spoke to a dear friend of Joey's, Graham who gave me an update on Joey. She had a really tough night last night in the hospital but when she heard about how much love and support we are all pouring her way her energy and spirit lifted. Lets keep this going!! Time is of the essence for her. THANK YOU for those who are supporters, donors and are spreading the word.

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Joy for Joey posted a new update:
about 2 years ago

Joy For Joey is officially up!~

Help me reach my campaign goal on #Fundly! You can donate as much or little as you want. Check it out: http://fundly.com/qpd71qml
Insurance wont cover this procedure and its crucial that she get this test done to see if she can be entered into a special clinical trial ! Please help us spread the word, spread the love, and support Joey!

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