Jace "Gnome Nugget" Maples Fund

Jace "Gnome Nugget" Maples Fund

From Lindsay Wood

To help the Maples in any way possible.

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On January 28th, I fell in love. Not only was my best friend, Kathy Maples, a mom, Jace became my little Gnome Nugget. I could describe Jace with a plethora of praise but his pictures do more justice. Jace had a 50% chance of being born with the genetic disorder known as SCID. A complete lack of immune system. It is a hereditary mutation. Females carry the gene. Her brother was born with the same mutation and had a bone marrow transplant from his sister, Jenna. Kathy was aware she carried the mutation so preemptive measures were taken when Jace arrived. The tests came back positive for SCID. I happened to be in the room when the results call came. Never in my life have I been so proud of Kathy. She steeled herself with fortitude and determination I envy. When the call was over my mom gave Jace back to her and she looked down at him, smoothed his brow, and told him "we are going to get you fixed." I was honored and humbled to be part of this moment. Things became hectic over the ensuing days. The Maples family whisked away to Duke University in North Carolina to begin prepping for the bone marrow transplant. They were placed in an apartment for the extended stay. The transplant took place on February 19th. A liter of bone marrow was harvested from Kathy. Jace received it through a PICC line. It will take around 90 to 120 days for the cells to mature. Then the team at Duke measure for success. I am doing this campaign for Kathy and little Gnome Nugget to help them in any way it can. The most commonly quoted prevalence for SCID is 1 in 100,000. Please help in any way you can! Thank you. 

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