I am fundraising to assist me in getting me to St. Louis MO to have some very important MRI's done for my rare bone disease Avascular Necrosis. Also as to get some much needed DME equipment and clothing for surgery.
So when I was 36 years old my life changed forever. I first heard the words avascular necrosis and was told the only way to save my right knee was a total joint replacement. Sadly my body did take the replacement well which leaves me in intense pain most days on top of that I now have 7 other joints that are positive for the disease. However to begin treatments or surgical options the doctors are requiring I have an MRI. Due to severe trauma I am claustrophobic so I can only handle open MRI's which the nearest is 3hrs away. My body cannot handle going there doing the test and then returning so I would need to stay the night and need food and accommodations which I can't afford. I am on SSDI and the state does not allow me to keep the money I make over SSI I have to pay 279$ every month for a spend down to get my medicaid activated which I need for my home and mental health resources. I am also in need of a specialized cane which is covered by medicare but....no one will order since its not on their stock list..so I have to order it and wait for a 80% reimbursement which can take 6 months..the cane is over 250$. Every month something seems to come up that wipes me broke..but to be fair I only have about 20-30$ extra left each month though...So I could use any help at all...even 10-20$ can go a long way to making my day a little better and life a little easier to get this stuff going. Feel free to ask any questions you may have I will answer all.
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