Hi everyone, My name is Suppawit from Thailand.
It turns out Nada was growing without a thymus gland.
Following the diagnosis (and resulting shock and denial), My wife and I remained hopeful. We tried many things to help Nada grow stronger. Some of those things were more desperate than others, like eating 4 boiled eggs every day and many terrible tasting alternatives, but this was something we could do to help. Of course, this probably sounds strange from the outside, but parents will do anything for their children, especially in times of crisis.
A few days before the delivery, a group of specialists determined that Nada would not be able to live more than 3 hours after birth without medical intervention. It was heart-wrenching. My mind was racing. How many operations will she need? How much suffering will these operations cause Nada? How will these operations affect Nada’s future? What opportunities will her older sister have to sacrifice? In the end, we trusted the doctors to do what had to be done under the condition that no operation will cause Nada any immense pain.
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