Help! Little boy Yelysei from Ukraine need help (SMA1)

Help! Little boy Yelysei from Ukraine need help (SMA1)

From Nataliia Kiriushyna

I'm asking you for help. Little boy Yelysei Zelensky from Donetsk region really needs help. He has a fatal Werdnig-Hoffmann disease in other words spinal muscular atrophy (SMA) type 1, but he is not a hopeless patient.

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My name is Nataliia Kiriushyna and I'm from Ukraine. 

I am a volunteer. Please read our history.

I'm asking you for help. Little boy Yelysei Zelensky from Donetsk region really needs help. He has a fatal Werdnig-Hoffmann disease in other words spinal muscular atrophy (SMA) type 1, but he is not a hopeless patient. One injection of ZOLGENSMA and child's life saved. But the cost of this injection is simply astronomical for a Ukrainian family. Price of child's life is $2,234,013.

The baby's family are from Donetsk region, Bakhmut city (the city is located 20 kilometers from war zone). The child's parents are police officers and they don't have such a huge amount money.

We are trying to raise money for Yelysei through social networks but we understand that the amount is so large that we cannot cope without charitable foundations.

We contacted 72 charitable foundations of Ukraine and Russia, wrote to domestic  celebrities.  Unfortunately, almost everyone ignored us.

We're desperate! It is hard to imagine that the price of a baby's life is 1 injection. And this injection is the most expensive in the world.

I beg you to help us.

Unfortunately, the Stripe does not work in Ukraine and it will be impossible to withdraw donations from the fundly website, so if you have the desire and opportunity to help the child, please use the payment via PayPal (you can see the same link on the child's mother's social networks)

PayPal/https://paypal.me/pools/c/8rE61bhnsH (volunteer)

We will be grateful for any help!

Links to mother's social media page:

https://instagram.com/karishkazelenskaya?igshid=1m4hyov5jza93

https://www.facebook.com/profile.php?id=100011015269401

Please DONATE - even if it’s just $5! Everything helps!

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