Help Emily Fight Lyme!

Help Emily Fight Lyme!

From Emily Carlson

“One day at a time.” For the past 20 years, this has been my friend Emily’s mantra-- her cheerleader, along with her strong faith, that keeps her fighting despite suffering from scary and debilitating chronic Lyme.

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Update #3

21 days ago

Hi Friends,
I thought you all would want to know I am headed in this Wednesday for a BIG treatment. The doctors will perform neurotherapy, and then I will have a full and complete 10 pass treatment. These treatments have been super effective for me, with my body experiencing the greatest improvement to date. However, the treatments are also so hard on my body, the detox is insane, and I am basically out of commission for 2-4 days. I am so very thank full for all your prayers, love, and support...this is one of the times I need it the most. I believe this treatment, although hard, is so worth it and has been really helping to transform my everyday. Thank you for making this possible for my family and me.

Lyme treatment is intense, ongoing, and expensive. It is because of your donations I am able to see my doctors on Wednesday, and this is NEVER something I take for granted. It is humbling to have a whole team of doctors working to make my body stronger. It is humbling to lay there and watch my blood being cleaned of Lyme and all its coinfections, then be restored to my body in a new and improved state. It is humbling to stand in the check out process and have the receptionist say that my $1,200.00 treatment is fully covered. Last time this happened, I just stood there and cried. Y’all this is a humbling road I am walking. The lessens learned are great, the joy is abundant, the pain and hardships are real and intense, and the kindness from others is overwhelming. It is because of you, all this is possible. Thank you from the bottom of my heart. You have given more than just a financial donation, you have given healing, joy, and hope.
We would be ever so grateful if you would help us continue this fundraiser, by sharing the need and link with five-ten of your family and friends. They can make a donation if they are able and interested or help us by sharing with 5-10 of their family and friends. We are running out of time to reach our much needed goal, and this trickle sharing if the best way to reach that goal.
Again, thank you so much. We love and appreciate each one of you!
Warmly,
Emily Glenn, Johan, Erik, and Ingrid

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“One day at a time.” 

For the past 20 years, that has been my friend Emily’s mantra--her internal cheerleader, along with her strong faith, that keeps her moving forward despite suffering from scary and debilitating health issues related to chronic Lyme disease. All of Emily’s major adult milestones, from her marriage to Glenn to the births of their three children, are punctuated by experiences like these: mysterious symptoms resulting in Epstein’s Barr diagnosis (2000), miscarriage (2004), passing out/blacking out symptoms (2010), CT in emergency room revealing a pulmonary aneurysm (2015), and surgery to remove a brain tumor (2015). 

After Emily’s brain surgery in 2015, she spent three years going to follow-up appointments, getting brain scans every six months, and taking medication for hormone replacement. Still, she suffered from constant excruciating headaches, breathing problems, severe chest pain, brain fog, vision problems, neuropathy issues, nightmares, and total neurological dysfunction. This was no way to live. In a state of desperation, Emily reached out to Dr. Darvish at Holistique Medical Center in Bellevue in March 2018. After a series of medical tests, infrared technology, and MRI/CT scans, Dr. Darvish validated what Emily was feeling: her whole body was in a state of non-function and under massive attack with chronic Lyme disease. 

For the past year and a half, Emily has been working with Dr. Darvish to boost her body’s immune functioning and her quality of life. We are incredibly thrilled to share that her Lyme and its various co-infections have been at least temporarily suppressed as a result of six successful and invasive treatments to strengthen her immune system. Feeling incrementally better has given Emily new hope, but there is more work to be done and unfortunately it is expensive. Over the next eight weeks, Emily’s next phase of treatment will focus on battling mold in her brain and addressing a thymus “block” caused by the constant stress of Lyme. The cost of these treatments is an overwhelming $13,000. 

Most Lyme treatments are not covered by insurance, they are ongoing, this is just the next phase of treatment. With $10,000 out of pocket for medical expenses in the last year, Emily’s family has avoided medical debt, but they have depleted their savings. Emily and Glenn are both reluctant to ask for help. In fact, their resistance to the idea has led them to talk about NOT doing the treatments or waiting until they can save up the money to go forward with them. But, Emily is finally making significant progress towards health. This is a crucial point on her journey and she needs all the love, support, and financial help she can get. Unfortunately, the treatment will not “fix” her or cure her of Lyme, but it will give her more energy, a stronger immune system, and a roadmap for her future. 

I know Emily struggles with this request for help. She wonders what gives her the right to ask others for financial assistance and whether she is worth it. I assure you she is. As she told me, “The last 20 years have produced more than just sickness. I have seen just how strong and courageous I actually am.” She is a fighter, a really tenacious one, who needs our support. Please help us raise the money she needs to proceed with her treatment at this critical time. 

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Help Emily raise $13,000 by making a donation.

Emily Carlson posted a new update:
21 days ago

Update #3

Hi Friends,
I thought you all would want to know I am headed in this Wednesday for a BIG treatment. The doctors will perform neurotherapy, and then I will have a full and complete 10 pass treatment. These treatments have been super effective for me, with my body experiencing the greatest improvement to date. However, the treatments are also so hard on my body, the detox is insane, and I am basically out of commission for 2-4 days. I am so very thank full for all your prayers, love, and support...this is one of the times I need it the most. I believe this treatment, although hard, is so worth it and has been really helping to transform my everyday. Thank you for making this possible for my family and me.

Lyme treatment is intense, ongoing, and expensive. It is because of your donations I am able to see my doctors on Wednesday, and this is NEVER something I take for granted. It is humbling to have a whole team of doctors working to make my body stronger. It is humbling to lay there and watch my blood being cleaned of Lyme and all its coinfections, then be restored to my body in a new and improved state. It is humbling to stand in the check out process and have the receptionist say that my $1,200.00 treatment is fully covered. Last time this happened, I just stood there and cried. Y’all this is a humbling road I am walking. The lessens learned are great, the joy is abundant, the pain and hardships are real and intense, and the kindness from others is overwhelming. It is because of you, all this is possible. Thank you from the bottom of my heart. You have given more than just a financial donation, you have given healing, joy, and hope.
We would be ever so grateful if you would help us continue this fundraiser, by sharing the need and link with five-ten of your family and friends. They can make a donation if they are able and interested or help us by sharing with 5-10 of their family and friends. We are running out of time to reach our much needed goal, and this trickle sharing if the best way to reach that goal.
Again, thank you so much. We love and appreciate each one of you!
Warmly,
Emily Glenn, Johan, Erik, and Ingrid

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Emily Carlson posted a new update:
about 1 month ago

Update #2

I always begin each new year with a word. A word I feel is going to play a big role in the upcoming year. I usually spend the first couple weeks of January praying, studying, searching, and doing a little self analysis/assessment to find my "word" for the year. This is my way of doing a new years resolution... The word, in the past, has proven to be very profoundly interwoven through all of the different areas of my life.
I share this today to encourage others. We all have different ways of addressing the new year; some diet, others add in exercise or meditation. I am not against these at all...in fact I am looking to change or add in all of those great things in the upcoming year. But I have found a word often helps to define and change my year in such a healthy and profound way.
I had treatment on Wednesday, and my body responded with a BIG detox herx response. It was completely shutting down by the time I got home from youth group with my kids, and when I woke up yesterday morning I could barely move. This is not unusual, Lyme treatment is intense and those darn bugs never die easily. As I slowly limped to the sofa I found the discouragement setting in. I hate so much that this is a part of my reality, and I hate that my kids have to deal with a mom who is barely functioning. But instead of giving in to this discouragement, I savored my coffee, read my devotions for the day, snuggled my littlest sweet pea, and decided to be intentional with my day and what little energy and movement I had. This awareness of my attitude has the ability to transform my day and those I get to interact with. I could have chosen to sit and wallow in pain, but I am thankful I changed my tude and chose to engage with my day... it actually turned out pretty good.
I encourage you to look for a word that could inspire, encourage, and uplift you. It always amazes me how one simple word can manifest big changes in my everyday! So my word for 2020, after much prayer and soul searching...
“Intentional”
What does it mean to be intentional? It means you are purposeful in word and action. It means you live a life that is meaningful and fulfilling to you. It means you make thoughtful choices in your life. Being intentional means you actively interact and engage with your life.
Here’s to an intentional 2020!!!

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Emily Carlson posted a new update:
about 1 month ago

Update #1

2020 HAS ARRIVED! I finished the year strong with my last treatment on the 27th! I was able to go out of 2019 with a bang, with my biggest and most invasive treatment yet, thanks to YOU! I am so incredibly thankful for the generosity from friends, family, and strangers alike. My current treatment regimen is kicking my rear in a good way, and I am finally beginning to see major changes in my everyday. I have more energy, less headaches, much loss brain fog, and my neurological system is finally beginning to calm down. I can’t tell you how thankful I am, and how blessed my family is by these changes. They are beginning to see Mama coming back to life! So from the bottom of my heart, thank you. Thank you for helping me take these next steps, I am forever grateful!

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