Fight For Sammy Round 2

Fight For Sammy Round 2

From Amanda Palermo

I’m raising money to help with Cancer treatment for my 8 year old niece and lost wages for my brother’s family while he’s out of work taking care of her.

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Recent Updates

Update #18

about 18 hours ago

Long update from my sister in law:
“ So we have had a change in plans. They mobilized the transplant much sooner than expected.

So now, they will be admitting her next week for her bone marrow transplant. We will be going in for a meeting on thursday morning. It will be with both teams to talk about every thing that is planned and what will be happening. Rich and I will both be there to go over everything. It is just so much new information all thrown at us when we expected an easy 6 weeks.

Each day that she is in the clinic for the next two weeks are going to be from 7:30 till 3 or 4. She is getting a full work up. They finally got the more in depth testing to look at the cyst on her pancreas.

Then when she is admitted, she will be given a large amount of chemo meds and radiation. From what I understand, they will be killing off all of her bone marrow. Then on the 10th is the tentative plan to be the day that they give her the donor marrow.

Then we have the next long stay in the hospital. They will be monitoring her very closely for the next month to much longer. She will have absolutely no immune system for the first part of the month. We hope that she will start to show signs of her body recovering around middle to late November.

Sorry for not updating everyone sooner. But it was only finalized in the last 2 days. We are still scrambling to make sure that all the appointments are noted down on top of day to day life.

Sammy has a list of things that she has wanted to do before she goes back into the hospital, since it will be December or January before she is out again. So we have been working on this things.

(Included is a photo of her today for clinic and some scans)

Thank you for you love and support,
~The Tidys”

More Info

on November 21, 2016, my brother and his family’s life would be changed forever. They received the news that Sammy, their 4 year old daughter had Leukemia. She fought hard and strong, and on March 17, 2017, she was officially in remission. On July 20, 2020, after going in for a routine blood draw, my brother received the unthinkable phone call, Sammy’s cancer is back. The plan of attack, this round, is going to be more aggressive. So, it’s time to rally together, put those orange bracelets back on, #fightforsammy Whatever money raised is going to help cover medical bills for her treatment. 

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Amanda Palermo posted a new update:
about 18 hours ago

Update #18

Long update from my sister in law:
“ So we have had a change in plans. They mobilized the transplant much sooner than expected.

So now, they will be admitting her next week for her bone marrow transplant. We will be going in for a meeting on thursday morning. It will be with both teams to talk about every thing that is planned and what will be happening. Rich and I will both be there to go over everything. It is just so much new information all thrown at us when we expected an easy 6 weeks.

Each day that she is in the clinic for the next two weeks are going to be from 7:30 till 3 or 4. She is getting a full work up. They finally got the more in depth testing to look at the cyst on her pancreas.

Then when she is admitted, she will be given a large amount of chemo meds and radiation. From what I understand, they will be killing off all of her bone marrow. Then on the 10th is the tentative plan to be the day that they give her the donor marrow.

Then we have the next long stay in the hospital. They will be monitoring her very closely for the next month to much longer. She will have absolutely no immune system for the first part of the month. We hope that she will start to show signs of her body recovering around middle to late November.

Sorry for not updating everyone sooner. But it was only finalized in the last 2 days. We are still scrambling to make sure that all the appointments are noted down on top of day to day life.

Sammy has a list of things that she has wanted to do before she goes back into the hospital, since it will be December or January before she is out again. So we have been working on this things.

(Included is a photo of her today for clinic and some scans)

Thank you for you love and support,
~The Tidys”

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Amanda Palermo posted a new update:
4 days ago

Update #17

Crooked Pecker Brewery brewed a special IPA to benefit our cause, cans sold out by this afternoon! A huge shout out to them! We’ve raised just under $1000 in 24 hours!!!!

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Amanda Palermo posted a new update:
5 days ago

Update #16

Ok. That was supposed to say almost 80% 😉

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Amanda Palermo posted a new update:
5 days ago

Update #15

We are at 80% of our goal!!! This is so exciting! Thank you all who have donated so far!!

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Amanda Palermo posted a new update:
8 days ago

Update #14

Latest news from my sister in law:
“ Today was the office visit to find out if Sammy is in remission or not. Rich and I were edge all day today as clinic was at 2.

However, the clinic visit was cancelled with the biopsy results not having come back in. Rich and I were settling in for being stressed at not knowing.

However, her primary doctor called to tell us that she did hit remission. Which is the best news we have heard in a long time! It is a weight off our shoulders. Sammy is beyond thrilled.

We know that anything could go wrong again at anytime, however we have to celebrate every piece of good news!

We will be back on the medicine from the last cycle again. Their statistics have been from two cycles of it. So we have a short hospital stay as long as she does not react to it. After the first few days, she should come home with her pump again. We will be spending the weekend decorating her iv pump bag to make it beautiful.

She should be home for Halloween. After, this cycle they are working to mobilize the transplant team. We will switch to them being her primary team when we get to that phase.

Thank you everyone for all your love and support!

~Love,
The Tidys”

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Amanda Palermo posted a new update:
10 days ago

Update #13

Most recent update from my brother via text, with his permission, here it is:
“ Had the biopsy done on Thursday and have a tentative place in plan that takes us through the rest of the year. We're anxiously awaiting the results before anything is finalized and will hopefully know more come Monday when we go in for our next consultation. “

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Amanda Palermo posted a new update:
13 days ago

Update #12

I know I haven’t posted an update in a while, and people have been wanting to know. So here we go!

Sammy has finished her 28 day continuous drop!!!

Here’s my sister in law’s update:

Day 28! How do I know?

The fact that we are done with the bags in our fridge, yesterday. (Which was perfect timing because our fridge decided that the fridge would not cool. We got it fixed today and the guy was so nice. Finished in just under two hours, even with getting the parts!)

Last night was the first night that we had issues with her pump. The needle part in Sammy was being finicky. It had to be taped down to finally stop beeping. The nurse suspect it was just moving in her sleep.

Today, we had a visit from the care nurse to deaccess Miss Sammy. Her pump left and she was thrilled to be without her pump bag and tubie attached. Also, someone is a pro at her covid test at home. Test number 9? I think. I need to check that.

She enjoyed a nice long bath tonight before she goes in tomorrow morning for her spinal tap for her last medicine in this cycle. I believe the bone marrow draw is tomorrow as well since she will already be under. So she has a few hours before she gets a needle in her again. She is enjoying going to sleep sprawled and not worried about where her bag is.

Thank you so much for your love and support. ~The Tidy Family

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Amanda Palermo posted a new update:
about 1 month ago

Update #11

Latest update:

“ The results from the biopsy are in... and it's a struggle to type this in between the tears.

We did NOT make remission.

That was the goal for Induction therapy, and the only chance for an easy road going forward... and we didn't get it.

Her primary team will meet with tumor board tomorrow to present their plan to move forward. They have a tentative plan for what they would like to do next and are all in agreement but they want to run it with the senior panel to make sure there are no other options out there before the proceed. Sometimes someone else may have heard of a drug, or read about a different procedure so they always check before moving forward in cases like this.

Right now, the idea is that we will go back to the hospital on Monday and start a new IV drug. It is a continuous drip IV for 28 days and she will have to be admitted again for at least the first 14. There are some pretty rough potential side effects they want to monitor for, but if she responds well she should be able to go home for the second half. We would have to go back for bag changes, but that should just line up with her normal visits so it shouldn't be a major issue.

After that, they'll do either biopsy to check for remission again. If not, they either repeat the 28 day drug or try another approach.

Once remission is obtained, they're going to move forward with the bone marrow transplant. She MUST be in remission first to minimize potential complications, but she will still have to be admitted for a lengthy stay while they monitor for reactions to this as well.

It's going to be a long, painful road for the next couple months, but she is strong. She can do this. She HAS to do this. There is NO other choice.

Improvise
Adapt
Overcome

The Tidys “

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Amanda Palermo posted a new update:
about 1 month ago

Update #10

Update from my brother last night/this morning:
“ Day 38/Forever

We were SUPPOSED to go home today. We didn't say anything because we didn't want to jinx it. Well... that blew up in our faces.

Sammy wasn't allowed to eat or drink anything this morning in preparation for her procedure... fine, normal. Numbers were a bit off but everything was good enough to go forward and if the procedure went smoothly, we could go home.

Then.... they decided they wanted her to try and eat and drink afterwards, and keep it down. Nevermind that after a sedation she never has an appetite and we're lucky if she eats by dinner when she's in a good place.

Then.... GI decided they wanted one more look at her belly, so they ordered another ultrasound. So she wasn't allowed to even try to eat the food they wanted her to eat. So that got pushed back. For the several hours it takes to get anything done by radiology lately.

Then.... they decided they needed to give her another hour long IV of an antibiotic.... while trying to shove food in when she hadn't been allowed to eat in over 24 hours.

So of course we threw everything up. All three attempts.

And of course the ultrasound was occluded in the area they really wanted to see.

And of course they decided not to let her go home. At 10:30 at night. After being told all weekend we needed to get through the bone marrow biopsy in order to go home.

The good news? We found out that if her biopsy comes back and she's not in remission that this will seem like a short stay compared to the ones ahead of she needs a transplant!

Seriously?

How much more can this little girl be expected to endure?

When can our family be whole again?

The Tidys “

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Amanda Palermo posted a new update:
about 1 month ago

Update #9

Today, they continue to await for tests and numbers to find out when they will be able to go home. Sammy starts the 2nd grade, today. She will be doing so from the hospital

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Amanda Palermo posted a new update:
about 1 month ago

Update #8

Day 28 update...

31 days. That's how long Sammy has been in the hospital. While she is in the best place possible, and getting the care she desperately needs, it's still difficult to live like this.

Thursday was supposed to be the day we did her marrow draw and hopefully were able to take her home, but that has been delayed til at least Monday. The doctors assure us there is nothing to worry about, that counts are just being stubborn but that doesn't make the waiting any easier.

Today they had to change her access needle again. During the process she started crying and talking about how she wants to go home... she doesn't want to do this anymore... she misses her siblings and her pets. It's heart breaking.

While talking about the marrow draw being rescheduled, she asked if that was "when she finds out if she won or lost." Breaks your damn heart.

But, she keeps smiling through it all. Laughing at silly things in her movies (that she's watched 50 times this week alone), or giggling and snuggling her new "Poo-nicorn" courtesy of Erin Rozell. She reminds us what we're all fighting for.

We have to keep strong for her. We're going to pull through this. We're not going to give up. We're going to win this thing.

The Tidys

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Amanda Palermo posted a new update:
3 months ago

Update #7

We are half way there!!! Let’s keep it going! Thank you everyone for your support, so far!!!

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Amanda Palermo posted a new update:
3 months ago

Update #6

Thank you guys soooo much! We are at 25% Of our goal within the first week!!! Please continue to share the link so we can make it to 100%

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Amanda Palermo posted a new update:
3 months ago

Update #5

Newest update from my brother::
“forgot to update Day 2, and I apologize. Today is finishing up Day 3 already and unfortunately there isn't much good to report. The last couple days have been tough on our little warrior.

The chemo is already hitting her hard and affecting her appetite. In the last 48 hours she has pretty much thrown up what little she has tried to put down, and the excessive diarrhea has done the job of clearing out the rest.

The doctors and nurses continue to monitor her and aren't overly concerned but they are trying to encourage semi normal behavior, at least as much as possible in a Covid/Cancer world.

We're hoping the next couple days will be a bit better since we don't have any more IV chemo due til next Thursday.

She spends most of her time resting, and she does have a few things to try and keep her occupied otherwise so for now we take it a day at a time. We'll continue to update as more info is available but for now, just keep rooting for her.

The Tidys”

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Amanda Palermo posted a new update:
3 months ago

Update #4

Latest update from my brother:

“We just finished up our first official day of chemo.

Spent most of the day playing the waiting game and after conferring with more doctors, the plans we discussed with our team yesterday were implemented late this evening.

Poor Sammy spent the day mostly resting with a fever, but our doctors assure us there's nothing to worry about yet.

We're gonna get some more much needed rest for now but we'll be in contact soon.

Good night!
The Tidys”

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Amanda Palermo posted a new update:
3 months ago

Update #3

Just under 20% of our goal! Keep sharing everyone, and thank you all for your support! My family is truly blessed to have you in our corner!

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Amanda Palermo posted a new update:
3 months ago

Update #2

Latest Update from my Brother, from last night if you are in Facebook, you can join his group “Sammy’s Journey”
Here's where we're at so far for today....

Some preliminary tests have come back and they seem to be mostly positive. She is considered to be intermediate risk in the relapse based on age, time since remission and overall health. Low risk is very difficult to achieve so it's the best we can hope for.

The cancer, so far, appears to be limited to only a relapse of her Type B-ALL that she had before so the initial plan will be to use a lot of the same or similar medicines, just with increased dosages and adjusted frequency.

Yesterday she had her mediport reinstalled and they did a bone marrow biopsy and spinal tap with her first round of spinal chemo to get a jump on the process while finalizing where to go from here. The last two days and tomorrow have had numerous conferences and tons of research to come up with the best course of action.

Every relapse case is different and the plan will be constantly adjusted as needed going forward but for at least the first month of induction therapy, we're going to be taking up residence in the Hotel Rainbow again. This seems to be the best and safest course of action for now with the adjusted medicine plan.

It's unfortunate, and we're not sure how we're going to make it work entirely but we have no choice but to try.

Based on the positive indicators, the team is cautiously optimistic that we can do this. Expected survival rate is about 65%. We REFUSE to settle for any outcome but that one.

With Covid restrictions, visitors are not allowed at this time. Jennie and I are the only ones allowed up, not even her siblings are allowed to come up... it really sucks.

Things can be sent to the hospital vis MacDonald House at Rainbow Babies and Children, Mac6 Room 6017 or taken to our house and we can find ways to get it to the hospital ourselves. Obviously this isn't necessary, but I know who I'm dealing with out there.

My sister has also put together a new Fundly page to help with expected hospital bills and lost wages while getting this process underway. Obviously times are tight so no expectations are out there but any help is appreciated if possible.

More updates will come as we can and we appreciate all your continued love and support.

The Tidys

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Amanda Palermo posted a new update:
3 months ago

Update #1

Amazing!!!! Over $500 in the first 12 hours!!! If we can keep that up we will hit our goal in no time! Thank You all for your support! Please Please PLEASE continue to share the link. #fightforsammy #round2FIGHT

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