#savestephane237

#savestephane237

From Emily Pinna

Stephane was born with the Hirschsprung syndrome, a very rare disease. Stephane needs surgery urgently as his colon could explode any moment in which case he would die.

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Update #9

8 months ago

Very quick update, dear friends.
Stephane has been discharged from the hospital last Tuesday! HE IS OFFICIALLY SAVED! We are forever grateful. However he has a little infection at the colonostomy incision and it needs to be drained every single day- under a short anesthesia as it hurts quite a bit. So we're back to the hospital once a day. We went to Bangangte over the weekend to reunite Stephane with his community. The family situation is complex as we just discovered...and far from ideal, so we are looking into a safe environment for Stephane and his 7 year old sister Jessica to start their education. We are looking into options in Yaounde, host families etc. Stay tuned. While we've payed for all medical bills so far we still have medical check ups and then soon education/host family related expenses.. We also met up with the mayor of Bangangte, a real strong woman, and are brainstorming with her about next steps. The guy on the picture is the amazing Prof. Dr. Mouafo himself, Stephan's surgeon!

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Remember the saying that it takes a village to raise a kid? Well, I need you all to be that village right now. 

During my 3 days stay in Bangangté, while visiting different beautiful places, my friends Idriss, Gaetan and I were taking a break at a little bar. We noticed a boy selling  avocados and his beyond-imagination giant belly. We were debating if he’d put a pillow under his jacket or what. After talking to him, Stephane (11), we understood it was indeed his belly. He was born like this and has a Rare disease called Megacolon Congenital/the Hirschsprung syndrome (1:5000). He said he saw different doctors and that surgery would get rit of the problem but his parents couldn’t afford the surgery. We got his mom’s number and met with her the following morning. We got the medical files to show doctors in Yaounde to confirm the diagnose and hopefully to organize his surgery ASAP as he is in a lot of pain quite often. 

Then we all went back to the school he used to be enrolled in and signed him up, turns out the parents couldn’t afford any longer the school fee of 4000 cfa a year!! That is $8. We were all happy, went back to his home only to discover that there are another 4 hungry siblings of which one was a 8 year old girl who as well hasn’t been to school for a while. We went back to the school, signed her up as well and took the kids to the local book store and bought their school books- they were the happiest kids in the world as even when they went to school in the past they never owned any books (school books range between $3-5). It was heart-melting. The kids went to school Thursday and Friday last week.

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Emily Pinna posted a new update:
8 months ago

Update #9

Very quick update, dear friends.
Stephane has been discharged from the hospital last Tuesday! HE IS OFFICIALLY SAVED! We are forever grateful. However he has a little infection at the colonostomy incision and it needs to be drained every single day- under a short anesthesia as it hurts quite a bit. So we're back to the hospital once a day. We went to Bangangte over the weekend to reunite Stephane with his community. The family situation is complex as we just discovered...and far from ideal, so we are looking into a safe environment for Stephane and his 7 year old sister Jessica to start their education. We are looking into options in Yaounde, host families etc. Stay tuned. While we've payed for all medical bills so far we still have medical check ups and then soon education/host family related expenses.. We also met up with the mayor of Bangangte, a real strong woman, and are brainstorming with her about next steps. The guy on the picture is the amazing Prof. Dr. Mouafo himself, Stephan's surgeon!

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Emily Pinna posted a new update:
8 months ago

Update #8

Very quick update, dear friends.
Stephane has been discharged from the hospital last Tuesday! HE IS OFFICIALLY SAVED! We are forever grateful. However he has a little infection at the colonostomy incision and it needs to be drained every single day- under a short anesthesia as it hurts quite a bit. So we're back to the hospital once a day. We went to Bangangte over the weekend to reunite Stephane with his community. The family situation is complex as we just discovered...and far from ideal, so we are looking into a safe environment for Stephane and his 7 year old sister Jessica to start their education. We are looking into options in Yaounde, host families etc. Stay tuned. While we've payed for all medical bills so far we still have medical check ups and then soon education/host family related expenses.. We also met up with the mayor of Bangangte, a real strong woman, and are brainstorming with her about next steps. The guy on the picture is the amazing Prof. Dr. Mouafo himself, Stephan's surgeon!

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Emily Pinna posted a new update:
9 months ago

Update #7

9.2.2018
So much has happened. Mainly and most importantly the 2nd surgery, on Tuesday. This one was the big one where the sick part of the colon was cut out (45 cm) ...the surgery was very long. A few scary moments happened. Then all seemed fine and Stephane was recovering well.

Except for yesterday, Stephane was very very weak and in urgent need of a blood transfusion. But the clinic couldn't find any blood. Within minutes of posting the need of blood on my private Facebook page we had people heading to the Hopital General. It was mind blowing how many people were willing to donate. Total strangers I had never heard their name before. And this is what struck me on and on in this experience, the willingness to help out, THE POWER OF COMPASSION.
After hours and hours and few hick ups at the hospital Stephane finally got the blood transfusion. He is better but still very much in pain....pain management doesn't seem to work very well so far. It's hard to see him suffer and hoping he'll be over it very soon. We still have one surgery to go, and more money to raise. Thank you thank you for being there for Stephane.

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Emily Pinna posted a new update:
10 months ago

Update #6

I spent quite some time today with Stephane today, and it's so amazing to see his transformation from a sad boy in pain to a happy, pain free kid. He is recovering well from his first surgery last week and is getting ready for his 2. surgery on Monday.

My suspicion got confirmed by a doctor this morning, Stephane's baby brother, Junior, 14 month old, is quite malnourished :( so we're taking care of that too. Luckily some of the nurses will teach the mom how to prepare inexpensive nutritious baby food.

We're so thankful for the contributions which reach from 200 cfa (30 cents) through local money donations to $500 through this website. It truly is a community effort and the solidarity and willingness to help is humbling.

Together we can.

Please keep sharing this page as we need urgently to raise $800 to be able to afford the surgery on Monday. Thanks so much.

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Emily Pinna posted a new update:
10 months ago

Update #5

little by little we're getting closer to our goal!!
While Stephane is doing better everyday and getting closer to his second surgery, there is so much else going on behind the curtains: we're organizing a few 'coaching' sessions for Stephane's mom, Mama Modestine, to find out how she can build a sustainable business through microfinance that will allow her to feed her family in the near future.

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Emily Pinna posted a new update:
10 months ago

Update #4

WOOOW we are at 25% of our goal!!! Amazing!!! I just talked to Stephane and he is doing well....he's such a sweet boy.The next surgery will be in 10 days. Things we need the money for are for example colostomy bags...they are quite expensive ($5 each) and need to be changed 2 times in 24 hours till the next surgery so that alone will be $100. All the material during the surgery, glove, needles, thread, cotton and what else need to be financed by us. Please let's keep the momentum and share. Together we can save Stephane!

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Emily Pinna posted a new update:
10 months ago

Update #3

Hey everyone.
just a quick update: THE FIRST SURGERY WENT VERY WELL!!!
Idriss was in the operating room and stayed the whole day with Stephane and his mom. (I just arrived in Germany as my mom has a hip replacement surgery tomorrow- back in Yaounde on Monday). Stephane is recovering and everything is moving on as planned. However the next surgery is coming up in approximately one week- please help us by sharing this page. Donations are coming in and its so touching to see this solidarity. It's amazing but we have a long way to go. Forever grateful.

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Emily Pinna posted a new update:
10 months ago

Update #2

TOMORROW is the BIG day!!!

Prof. Dr. Mouafo told us today that the 'decompression phase' (cleansing) was very successful and the perimeter of Stephane's belly went from 94cm to 69 cm! Stephane is getting ready for surgery which will happen tomorrow at 11 am. It's the first of three surgeries needed to save him.

The first surgery is a colostomy.
What is that?

During a colostomy, surgeons divert one end of the large intestine into a visible opening – known as a stoma – on the patient’s abdomen. A small pouch, or colostomy bag, is then placed over the stoma to collect waste products that would normally pass through a person's rectum and anus in the bathroom.

The colostomy bag will only be there temporarily while the ill part of the colon takes a break. About a week later the second surgery will follow. More on that later.

Soooo thankful for your contributions....but please keep sharing we have still a loooooong way to go!!!

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Emily Pinna posted a new update:
10 months ago

Update #1

A few X-rays later Stephane is hospitalized and getting ready for his 3 surgeries. He's in great spirit and very excited about Mr. Stephen the teacher who is coming to the hospital on a regular basis to tutor him, thanks to the generous offer of Tassah Academy's founder Janet Fofang. This is so exciting because Stephane has not been in school for a long time and is very eager to learn and catch up.

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