Leah Marks' Race To Cure CF | Team EE Philadelphia Marathon

About Team EE

Team EE is made up of dedicated and inspired runners - new and veteran - who are committed to racing to find a cure for cystic fibrosis. 

About Emily's Entourage

Emily’s Entourage is a 501(c)3 that fast tracks research for new treatments and a cure for rare nonsense mutations of cystic fibrosis ("CF"), a fatal illness afflicting Emily and many others. Since 2011, Emily’s Entourage has raised over $2 million to drive high impact research and groundbreaking collaboration. Fueled by powerful communities, Emily’s Entourage is taking off, and now is our chance to build on the momentum and soar. To learn more, visit www.EmilysEntourage.org.

Exciting EE News

Emily’s Entourage is fueled by powerful communities, small and large. Thanks to the groundswell of support, passion and dedication, EE has:

• Watched our donations reach an awe-inspiring $2 million, allowing us to fund promising research at distinguished academic institutions.  
• Formed a new Scientific Advisory Board with the world-class researchers and drug developers in the areas of Cystic Fibrosis and translational research.  
• Hosted two scientific symposia, including one at Penn Medicine’s Orphan Disease Center, spurring new collaboration, paths of inquiry and the exploration of novel treatments and technologies by leading researchers from around the world.
• Been featured on CNN.com, People.com, Time.com, Yahoo Health and CBS’s The Doctors.
• Swelled with pride and hope when, representing the Entourage, Emily was honored at the White House as a “Champion of Change” for Precision Medicine.
• Had our inaugural event in NYC with over 300 people, which raised an astounding $110K!
• Brokered an FDA approved clinical trial of a combination therapy in which Emily is the first and only participant in the world.

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