Diane Hughes fundraising for FUN FIT FLEX

Diane Hughes

Fundraising for:
FUN FIT FLEX

From Diane Hughes

I am raising money to support The Myositis Association which provides support to myositis patients and helps fund research programs that will lead to a cure for myositis.

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About Me

I was diagnosed with dermatomyositis in November 2019 although I expect that I had been misdiagnosed for over 10 years. My diagnosis came after months of feeling weaker, walking slower, tripping on air, and struggling to climb stairs. For over a year, it had been easy for me to become off balance when walking my dogs and I had several face plants in the mud courtesy of a rowdy dog. Then, in the fall of 2019, I had a couple of falls that I couldn't brush off as caused by something else. This led me back to the doctor with an explanation of my long medical history and a reminder that I still had an unexplained increase in my liver enzymes that had been brushed off as fatty liver disease. Thankfully, my nurse practitioner listened and did blood work which showed a positive ANA. She sent me to a great rheumatologist who gave me the diagnosis that I had expected of dermatomyositis. The "dermato" part was aa little unexpected at first but then I understood that the series of unexplained rashes that I was told were allergic reactions were also part of this rare disease.

More Info

Fun Fit Flex is TMA’s newest signature awareness and fundraising campaign dedicated to raising awareness and funds for the 75,000 people living with myositis in the United States.

Each event will host a non-competitive fun walk, a festival of fitness demonstrations and activities, nutrition and wellness components, and family fun!

Funds raised through Fun Fit Flex will help support patient programs, enhance professional education efforts, and propel critical research for cures.

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