Dancing to fight IBD

Dancing to fight IBD

From Melody Condon

I'm raising money this year for the Crohn's & Colitis Foundation and Girls with Guts, two organizations that I highly value as someone with an inflammatory bowel disease (IBD).

Support this campaign

Subscribe to follow campaign updates!

Recent Updates

Update #5

about 3 years ago

Thanks to the incredible generosity of the various communities I hail from, Girls with Guts and the Crohn's and Colitis Foundation will EACH be receiving over $650 apiece. That is more than I hoped or dreamed! Two successful Zumbathon events and an online campaign that filled me with love. Thank you all.

More Info

I was diagnosed with Crohn's disease, an incurable chronic illness, when I was 19. Since then I've had two flares, three colonoscopies, thousands of pills, dozens of injections, indescribable physical pain, countless administrative nightmares, and mountains of fear and gratitude alike.

It was a revelation to me, the first time I put on a fundraiser for the Crohn's & Colitis Foundation (then called CCFA) four years ago, that in the Zumba community I had found limitless love and support. I was afraid to talk about my disease, especially on a stage, but that fundraiser cracked open the outer shell of fear to reveal a vein of passionate activism. At least, I knew then that I would need to keep talking about IBD to help fight the stigma that keeps people feeling alone and prevents them recognizing their symptoms or getting the treatments they need.

I was fortunate to stumble upon Girls with Guts, a much smaller nonprofit, in 2015. This group puts on annual retreats specifically for young women with IBD, and it is difficult to put into words how much I value the two retreats I've attended. They made me feel like I would never be alone, like there were people who truly understood and cared what I was going through. And they showed me the incredible fortitude and adaptability of IBD patients. Suddenly I was hopeful about my future again.

The Crohn's & Colitis Foundation is my best hope for new medications and continuous discovery that could lead to a cure for IBD. Girls with Guts offers acceptance and hope on a very personal level to hundreds of women just like me. I would like to donate half of the proceeds (from the Zumba party event and from this donation campaign) to each organization.

Zumba is such a gift to my life and to the lives of millions of others. For me, it offers a way to be grateful for and connected with this struggling body of mine. No matter what, there is always dance and always music in my heart.

Thank you for sharing this with me.

Campaign Wall

Join the Conversation

Sign in with your Facebook account or

Melody Condon posted a new update:
about 3 years ago

Update #5

Thanks to the incredible generosity of the various communities I hail from, Girls with Guts and the Crohn's and Colitis Foundation will EACH be receiving over $650 apiece. That is more than I hoped or dreamed! Two successful Zumbathon events and an online campaign that filled me with love. Thank you all.

Join the Conversation

Sign in with your Facebook account or

Melody Condon posted a new update:
about 3 years ago

Update #4

Ahhh! I reached my goal, with just two days to spare! Thank you so much for donating. Your support means more than I can say to me and to my many friends (I can say "many" thanks to Girls with Guts retreats!) with Crohn's and ulcerative colitis. I don't take your contribution lightly, and neither will the organizations that benefit.

Thank you!

Join the Conversation

Sign in with your Facebook account or

Melody Condon posted a new update:
about 3 years ago

Update #3

With only two weeks to go, I'm at just about 75% of my online fundraising goal! I can't thank the donors enough for your support of me, of my many friends with IBD, of the once-lonely young women who find strength and hope in Girls with Guts retreats, and of the millions of others who would benefit from advances in research. But I'll try: THANK YOU!

Join the Conversation

Sign in with your Facebook account or

Melody Condon posted a new update:
about 3 years ago

Update #2

Tickets are now available for anyone wishing to attend the Zumba event! https://www.zumba.com/en-US/event/view/ibd

Join the Conversation

Sign in with your Facebook account or

Melody Condon posted a new update:
about 3 years ago

Update #1

I'm still working on getting the link to buy the Zumba party event tickets up and running, but in the meantime I wanted to provide a place for people to donate who can't attend the event.

The Crohn's & Colitis Foundation (www.crohnscolitisfoundation.org) works tirelessly on research and events to improve the lives of people with Crohn's disease and ulcerative colitis. Girls with Guts is a much smaller nonprofit that, among a few other things, puts on a yearly retreat for young women with these diseases. I've attended twice and found it to be exceptionally healing.

I consider myself very lucky to be healthy enough to dance, and as I've done once before, this year I wanted to leverage the best thing in my life--Zumba--to fight the worst.

Thank you for your time and consideration!

Join the Conversation

Sign in with your Facebook account or