PCS (Post Concussion Syndrome) sickness fund

PCS (Post Concussion Syndrome) sickness fund

From Chaim Welis-stosser

Im here to raise awareness/raise money for the condition i have. All funds raised will go directly to my medical costs and other expenses due to me being unable to work at this point in time.

Chaim Welis-stosser

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Chaim Welis-stosser posted a new update:
2 months ago

Update #17

hey all,
I've recently been having meetings with my neurologist, GP, psychologist, neuropsych and physio about the medications I've been taking and where to go from here. it's been an incredible month and a half now for me. I have been able to get out more, exercise and will hopefully be starting some work for a couple hours a day this week.
the downside to all of this is I've been struggling with my mental health of late, not sure if its due to struggling to get back into the world, or if its due to the amount of life I've missed already due to this condition or if it actually is the medications causing this spike in my mental symptoms.

when i say mental symptoms i refer to the depression which just comes on at any point in time.. and the anxiety which travels all the way throughout my body from head to toe. we're trying to find ways in which i can still be on these medications for my physical health and help the mental battle as well.

i will keep you all updated when we know more of whats to come.

would like to thank each and every one of you for the amazing contributions, donations and messages.. i still have a long way to go and will need all the help and support i can get.

please continue to share, donate and spread awareness for this condition which im battling with so we an help myself along with many others suffering around the world.

thank you all!
chaim
xx

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Chaim Welis-stosser posted a new update:
4 months ago

Update #16

hey everyone,
my neurologist along with my doctor and a couple of new specialists have recently had another meeting, and i will be testing out a whole range of medications to see if they can help give me relief or some relief throughout the days so i can potentially work abit, or go for a run again etc.
i will hopefully be starting tomorrow and will keep you all updated on how it all goes.

I have also gotten in touch with a company called Mind Medicine Australia, so will see what they have to offer aswell.

want to thank each and every one of you who have donated to my cause up until this point, it truly means alot to me and has helped me in more ways than i can ever put into words!
please continue to share as the more awareness which is spread, the more the world will know and care about it.

thank you and all the best
chaim
xx

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Chaim Welis-stosser posted a new update:
5 months ago

Update #15

to whom it may concern,

I have recently been forced into reopening my campaign after the little allowance i get from the government has been stopped for now due to lack of medical evidence for my condition, i will be working with my neurologist to get it reinstated.

over the last couple of weeks i have been seeing a new doctor who's specializes in concussions now. I've had some blood tests done and nothing in that has been affecting my concussion symptom which is both a positive and a negative. there is no physical damage on my brain after having a special MRI a couple of weeks ago now down in geelong.

I will be seeing him over the next few months doing a range of things which includes Neurofeedback and using a PONS device at some point. we're not sure of the exact costs of it all yet, but at the moment it is costing me $225 a session and might be a little more when we get to those above mentioned.

I feel as though the fact that I've raised more than $14,000 has been scaring people away, maybe questioning "where is all that money going" "why does he need so much" or just simply they dont know much or anything about concussions or this damning condition.

my appointments and specialists vary from $80-$1000(+) and on 2 occasions $2500 and $2800 independently.

most of which are neurologists and brain specialists in which we have to use machines which are not available at any regular hospital or medical care center. these are for tests and after those tests we put some treatments into play, and see over a couple of months the outcome. (each check up costs $$)

so that is where all the money is going and why i need so much... i haven't gotten any better since November of 2017 again. i haven't been able to do any kind of work since then.

back in 2013-2015 i used more than $20,000 of my own savings, along with some help from friends to afford the appointments and treatments.

i understand this is a condition not many people know about, but this is a damn life sentence! yes, it may not be well known or heard about such as cancer or a heart disease, but this is just as deadly with the mental battle being just as damaging as the physical on a second to second basis!

every single donation will help me out immensely!!

PLEASE SHARE, PLEASE DONATE AND PLEASE SPREAD AWARENESS.

thanks so much!

chaim

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Chaim Welis-stosser posted a new update:
5 months ago

Update #14

to whom it may concern,

my campaign will be ending in just 24 hours from now and i will not be renewing it, i feel as though the fact that I've raised more than $14,000 has been scaring people away, maybe questioning "where is all that money going" "why does he need so much" or just simply they dont know much or anything about concussions or this damning condition.

my appointments and specialists vary from $80-$1000(+) and on 2 occasions $2500 and $2800 independently.

most of which are neurologists and brain specialists in which we have to use machines which are not available at any regular hospital or medical care center. these are for tests and after those tests we put some treatments into play, and see over a couple of months the outcome. (each check up costs $$)

so that is where all the money is going and why i need so much... i haven't gotten any better since November of 2017 again. i haven't been able to do any kind of work since then.

back in 2013-2015 i used more than $20,000 of my own savings, along with some help from friends to afford the appointments and treatments.

i understand this is a condition not many people know about, but this is a damn life sentence! yes, it may not be cancer or a heart disease, but this is just as deadly with the mental battle being just as damaging as the physical on a minute to minute basis!

they started by finding the condition post concussion syndrome and chronic traumatic encephalopathy after doing autopsies on people who were completely healthy in every other aspect of their lives besides for suffering for multiple concussions. they committed suicide.. left their loved ones.. their young ones..their friends and everyone else in their lives at that point in time, because noone understood.. and noone wanted to understand what it was about.

ITS TIME TO WAKE UP!

lets not wait for more people in Australia to commit suicide or whatever else they do to catch up to america and other countries around the world with concussion research and awareness.

every single donation will help me out immensely!!

PLEASE SHARE, PLEASE DONATE AND PLEASE SPREAD AWARENESS.

thanks so much!

chaim

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Chaim Welis-stosser posted a new update:
5 months ago

Update #13

to whom it may concern,

my campaign will be ending in just 2 day and i will not be renewing it, i feel as though the fact that I've raised more than $14,000 has been scaring people away, maybe questioning "where is all that money going" "why does he need so much" or just simply they dont know much or anything about concussions or this damning condition.

my appointments and specialists vary from $80-$1000(+) and on 2 occasions $2500 and $2800 independently.

most of which are neurologists and brain specialists in which we have to use machines which are not available at any regular hospital or medical care center. these are for tests and after those tests we put some treatments into play, and see over a couple of months the outcome. (each check up costs $$)

so that is where all the money is going and why i need so much... i haven't gotten any better since November of 2017 again. i haven't been able to do any kind of work since then.

back in 2013-2015 i used more than $20,000 of my own savings, along with some help from friends to afford the appointments and treatments.

i understand this is a condition not many people know about, but this is a damn life sentence! yes, it may not be cancer or a heart disease, but this is just as deadly with the mental battle being just as damaging as the physical on a minute to minute basis!

they started by finding the condition post concussion syndrome and chronic traumatic encephalopathy after doing autopsies on people who were completely healthy in every other aspect of their lives besides for suffering for multiple concussions. they committed suicide.. left their loved ones.. their young ones..their friends and everyone else in their lives at that point in time, because noone understood.. and noone wanted to understand what it was about.

ITS TIME TO WAKE UP!

lets not wait for more people in Australia to commit suicide or whatever else they do to catch up to america and other countries around the world with concussion research and awareness.

every single donation will help me out immensely!!

PLEASE SHARE, PLEASE DONATE AND PLEASE SPREAD AWARENESS.

thanks so much!

chaim

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Chaim Welis-stosser posted a new update:
6 months ago

Update #11

to whom it may concern,

this will be my final time reaching out for some much needed financial assistance during this difficult time in my life.

please help me reach my goal of $18,000 by contributing to the remaining $3,668.

all funds will be going directly towards my medical needs which includes seeing psychologists, neurologists, physio, exercise physiologists and brain specialists.

if possible, please do share this around with everyone whom you may know for the awareness of this condition and the more chance i can get the financial aid that i most desperately need at the moment.

PLEASE SHARE, PLEASE DONATE AND PLEASE SPREAD AWARENESS.

thanks so much!

chaim

xx

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Chaim Welis-stosser posted a new update:
about 1 year ago

Update #10

hey all,
just continuing on from my last update. I've recently gone to see the behavioral optometrist due to us (the team im working with at the epworth hospital) believing that there has been something adjusted with my eyes due to the concussions, which in turn has been forcing me to put a lot more effort into using them everyday. which would be adding to the pain in my head and the fatiguing. we;ve found some scratching in the eyes and afew other things wrong. but not sure if it'll help with the pain. it might help with the fatigue which would be a massive improvement for me. im going to be starting some eye treatment/therapy over the next couple of weeks. along with working with my team at the epworth which consists of a psychologist, exercise physiologist, neurologist and a physio.
reaching out for some help financially again, any and all donations go straight towards my appointments/treatments.
thanks to all those that have donated up until now, truly means the world to me and helps me out in more ways than i can put to words.

much love to you all
chaim

"at the end of the day its not about what you have or even what you've accomplished... it's about who you've lifted up, who you've made better. it's about what you've given back" - Denzel Washington

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Chaim Welis-stosser posted a new update:
about 1 year ago

Update #9

hey all
another update here. have been feeling really down of late due to everything which has been happening, not being able to exercise as much as id like due to the fatigue/dizziness etc.. weight gain has been abit of an issue for me mentally. i have some important appointments coming up with the behavioral optometrist to see if we can fix the issue with my eyes which may be the cause of the pain in my head.
having a treadmill test at the hospital to test out my fatigue and the dizziness factor. and seeing a neurological psychologist as well.

unfortunately there is no timeline for my recovery, here i am reaching out for some support once again. any and every donation goes towards these appointments i have coming up and future appointments/ treatments that i may need.

wanna thank everyone who has donated and reached out to me already, means the world! please continue to share my campaign around, not just for me.. but for the many people around the world who suffer from this not very well known condition. you're doing more than you think just by sharing it and spreading awareness :)

love you all and be well
xx

"be the reason someone smiles today"

https://fundly.com/c-t-e-sickness-fund

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Chaim Welis-stosser posted a new update:
about 1 year ago

Update #8

hey all,
i have recently been able to have more assessments done due to the amazing contributions i have received through my campaign.
positives from it- weve found that there are a few more things in my head contributing to the constant pain. i cant remember the medical terms, but there is something wrong behind my eyes due to the hits i sustained. which in turn has affected my balance, vision and is causing me to put a lot more effort into everyday living to be able to see properly etc.
i will be going to see a behavioral optometrist in the coming weeks to see what we can do to improve all of the above mentioned.
have also started working with another neurologist and exercise physiologist.
hoping to have some positive news to give you all in the coming weeks. time will tell.

again, without all the support both financially and people checking in on me i wouldn't have even gotten this far.. i thank you all!

please continue to share my campaign around for awareness, it takes a couple of seconds to share it around and you could be helping the process of saving alot of peoples lives in the near future.

love to you all
chaim x

"the smallest act of kindness is worth more than the grandest intention"- oscar wilde

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Chaim Welis-stosser posted a new update:
about 1 year ago

Update #7

hey everyone, another update here.
unfortunately things didn't work out with the physio. my symptoms have been getting worse each week, physically has been a challenge and mentally been the battle is getting tougher...
i've been recommended to go see some specialists of which i'll be going into a concussion clinic tomorrow for an assessment and then will see what they can offer to help my recovery.
ive also been recommended to go see someone at the national institute of integrative medicine.. unfortunately his prices arent all too affordable at the moment for me ( $1085, which includes the assessment and any treatments/medications)
and then there is also a headache clinic if those options dont help me with my recovery.
im truly grateful for all those who've helped me afford all the appointments i have tried, and the specialists ive seen .
here i am reaching out for help financially once again, any donation helps.. it all adds up. please share this with your family, friends, work colleagues, share with everyone you know.. not only will all donations help me with my recovery and get, (what i hope to be) the right treatment to get me better. but will also be spreading awareness for this shit of a condition, which affects many people around the world today.

thank you to all those who've donated..contributed and reached out to me... means so damn much to me.
much love to you all xx

"we cant help everyone, but...everyone can help someone"- Dr. Loretta Scott

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Chaim Welis-stosser posted a new update:
over 1 year ago

Update #6

hey there, just a quick update here. recently started working with a physio, doing a specific technique which has helped people in the past who have had pcs. have just begun working with him, so we shall see how it goes and if any improvements over the coming weeks. will keep you all posted.

the support has been incredible, thanks heaps to everyone who has helped me thus far, whether that be reaching out.. a donation etc. it all means the world to me so thank you once again.

please feel free to continue to share my campaign around for awareness and any support i get helps me more than i can put to words.

"No act of kindness, no matter how small, is ever wasted."

be well
chaim x

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Chaim Welis-stosser posted a new update:
over 1 year ago

Update #5

good evening everyone, just wanted to give another update.
thanks to all the donations i have received i will be meeting with another 2 specialists this week, and with the funds left i will have some follow up appointments as well. in a couple of weeks i will be meeting with one of the top concussion experts thanks to a member of the community. there are no promises but at the very least he gives me advice which helps me in some way.

thanks to all who have donated and who have helped spread awareness about this condition.

all your support helps me make it to the next day.

hope you're all well
chaim x

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Chaim Welis-stosser posted a new update:
over 1 year ago

Update #4

almost another week gone by, my pain has picked up abit. but thankfully with all the donations and support thats been coming through, it helps me mentally to fight through it all.
with the funds this week i was able to see another few specialists, and i will be trying some newer treatments over the coming weeks, along with seeing some new psychologists to see if they can help with the metal side of things as well.

cannot put into words again how thankful i am for all the support, but thank you.
and all the best to everyone

chaim x

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Chaim Welis-stosser posted a new update:
over 1 year ago

Update #3

https://concussionfoundation.org/CTE-resources/what-is-CTE
here is a link to give more information on my condition.

thank you to all those who have reached out and/or donatedup until this point, means so much to me.

all the best
chaim

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Chaim Welis-stosser posted a new update:
over 1 year ago

Update #2

thanks to everyone who has helped me get to this point, i have already been to a couple of appointments due to the generous donations made by people this week.

thanks to those who read this and just support me through this difficult time.

p.s. if anyone wants to share this, by all means go ahead, and thank you

all the best to everyone
chaim

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Chaim Welis-stosser posted a new update:
over 1 year ago

Update #1

thanks to everyone who has donated and reached out to support me.
with the money so far i will be able to go see a psychiatrist tomorrow without being in any debt, and with the leftover money i will be able to get the vitamins and foods i need for the week.

thanks
chaim

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