Diagnosis: Hepatoblastoma, 2018. Brynnley was 4 months old at diagnosis. First hospital stay was 6.5 weeks long with over a month of it in the PICU. We nearly lost Brynnley to a massive bleed from her tumor. Among other complications including 2 catheter associated blood clots she fought through it like a little baby superhero.
If I could teach the world one thing about my/my child’s condition, it would be: Even after the cancer is gone there is still a lot of healing to do and testing to be done. For Brynnley she will need help with eating, and physical therapy. She will need other test to check for side effects from chemo.
Our Legacy Wish: We want to help raise money in Brynnley’s name to help other pediatric cancer families at Nationwide Children’s hospital, as we were helped in our time of need.
We will be creating "Brynnley's Bundles." These bundles will include essentials for parents during their inpatient stay with their warrior. The bundles will help with expenses, personal care, and emotional support. They will remind moms & dads that they are not alone, and that they ARE strong enough to handle this!
Why we want to create this legacy: To always remember the journey we walked, and the strength Brynnley had. And to give families some peace of mind in other areas of their lives so they can focus on taking care of their child.
One thing we have gained and one thing we have lost during this journey: I am a pediatric nurse so I know what it’s like on the caregiver end. I gained the ability to understand 100% what it feels like to be the parent of really sick kid. We gained a second chance with her and will never take life for granted.
One thing we lost during this journey: I feel like we were robbed of the first year of Brynnley’s life, she is my last baby and we have had so much pain, fear and complications we were not able to fully enjoy her as a baby.
Interviewee: Carol (Mom)
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