Beat4Beat Virtual Music Festival

Beat4Beat Virtual Music Festival

From Alyssa Worsham

Our purpose is to advocate for children's healthcare, helping to raise funding for three well-known children's charities. Beat4Beat represents the idea that with every beat of music saves an innocent heartbeat at risk.

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PLEASE NOTE: This page is for sponsors to donate. The money collected from our sponsors will be for t-shirts, masks, banners, and other event merchandise/necessities. A link to make a donation to the three children's charities is provided below.

https://www.eventbrite.com/e/beat4beat-virtual-music-festival-tickets-120320741577

Beat4Beat Virtual Music Festival is dedicated to helping children’s healthcare as well as provide hope to children suffering from health afflictions by using music as the foundation for both. My reason for choosing this exact project has a deeper meaning to me than being just an assignment for a class. The idea stemmed from a personal experience in connection with my passion for music. So, here is the backstory behind why I am doing this.

When I was a little girl, my parents received a call from my doctor. My brother and I were watching the movie Pee-wee’s Big Adventure, lying on the floor and giggling at the movie as any five and seven year old would be. A few seconds into the call, my mom began crying with a look on her face that I will never forget. While telling me I needed to be taken to the hospital and attempting to explain what was going on, we packed my Dora the Explorer backpack to head out the door. I don’t remember the exact details following that moment, but I can tell you with certainty that my story doesn’t end there. For me to explain the sixteen years of my life since that day would be enough to write a novel and maybe one day I will share my story. For now, I’ll keep it simple.

What started as a five year old check up turned into frequent hospital visits, weekly treatments, and a never ending worry put on my parents wondering if their little girl would be alright. After receiving that call, I was admitted into the Children's Center at Johns Hopkins. Day in and day out my family and I spent in mystery as we waited for results and longed for an answer to the obvious question, what is wrong with me? At long last, I was given a diagnosis of having Immune thrombocytopenic purpura (ITP), a rare autoimmune disease where an individual’s immune system destroys the body's platelets which are necessary for blood clotting. ITP is typically seen in adults, however, children can be affected as well. Children diagnosed with ITP are more often seen in remission within 6 months or less from the start of treatments. In my case, I was diagnosed with Chronic ITP and I still have it today at 21 years old.

My situation was and still is hard, but I do not let it define who I am or what I can do. This event is not for me, but for the children I became friends with during treatments who had it worse. Every year, more and more children are given heartbreaking news that will alter their lives entirely. As humans, we tend to get consumed by things we cannot change and with doing this event, I am reminding others about the things we can change and that is whether a child sees another day. So, the purpose of this event is simple - give children a chance to live a happy and healthy life as I am lucky enough to say I did and still do every day.

After the event, all ticket funds will be evenly dispersed amongst the following:

Johns Hopkins Children's Center

St. Jude Children's Research Hospital

Platelet Disorder Support Association

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