Cutis verticis gyrata is a rare dermatological condition characterized by excessive skin folds in the scalp. People show visible folds, ridges or creases on the surface of the scalp. The number of folds can vary from two to roughly ten and are typically soft and spongy. The condition typically affects the central and rear regions of the scalp, but sometimes can involve the entire scalp.
Due to it’s rarity, the only current medical treatment for this condition is limited to plastic surgery with excision of the folds by means of scalp reduction or surgical resection. There has to be a better alternative as this might lead to patients encountering difficulties in the future.
Finding a cure for this rare diseases has come with many challenges. For example, CVG isn’t well characterized or defined, recruitment for trials has been difficult, high-quality evidence to guide treatments is scarce, and very few expert centers are available for diagnosis, management, and research of such disease.
We have managed to scrape together small grants and awards over the past five (5) years to get done what we set out to do but the journey is still a challenging one. Funding is crucially needed in order to continue with research at this point. Thank you
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