I am raising money to get a service dog! All donations will go towards service dog related expenses, such as orthopedic x-rays, service dog gear, and working with professional trainers and behaviorists.
How do my disabilities affect my daily life? Today has been a very good example of what makes hypermobility syndrome (HS) disabling for me. Despite the name, HS isn't just about what happens in my joints. Every part of me is affected.
Today I was supposed to go to work. When I got up this morning I took a shower, bushed my teeth, washed my face and got dressed. After I put my clothes on I turned to leave my room and was suddenly overcome with dizziness and nausea. I stumbled to a chair and almost fell over. I felt incredibly sick to my stomach, my head was pounding and the world was spinning. I could not stand or bend over without heaving.. I called my boss and told him that I would be kind of late for work because I did not feel well. He expressed concern and called my coworker to see if she could cover for me. Luckily she said she could cover the whole day so I didn't need to come in at all.
After a long nap I awoke feeling much better than I had. I decided it would be fine to walk around and do normal things with the assistance of my cane. I was wrong. I had a nasty fall and hurt my back. I was lucky that I did not hit my head. Now I am only walking with the assistance of my rollator.
All of this is not to say that my life is terrible, or to gain sympathy. I just want to educate people about the realities of what it means when your condition "substantially limits (a) major life activity." Today I could not go to work. The reason is that the process of getting ready for work was more than my body could handle at that moment. It is incredibly frustrating to be limited in this way. But my life is still good. I got some extra sleep, made some phone calls and sent some emails, and now I am going to get some extra time reading a book. Life is full of ups and downs. But being able to think about the things you are grateful about is an important part of coping with a disability.
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