Jack's FUNraising Page
Jack was raising money for the Umass Pediatric Infusion Unit, his FUNraiser reached it's goal thanks to all of YOU!!
Grace karen Sweet became a supporter
Joey Smith became a supporter
Robin and Andy Feldman donated $100
Maryellen Barry donated $100
An anonymous donor just gave $25
Jack Bernard posted an update:
Trooper Publishing, Inc. donated $3,197
Susan Zack donated $50
Julie Alicandro donated $200
World Wide Memorabilia Felicio donated $250
World wide memorabilia Felicio became a supporter
Ted Hunter donated $100
Maureen Lewis donated $25
Patrick Salazar became a supporter
Jack Bernard uploaded a new background
Jack Bernard uploaded a new logo
Ethan Hillman donated $100
Jack Bernard posted an update:
rick brown donated $100
- All Updates
- Fundraiser Only
Jack Pullman is nine years old and so full of life. He started this fundraiser to raise money for the UMass Pediatric Infusion Unit. Jack suffers from several Interstitial Lung Diseases, some other issues and/or unknown diseases that they are currently trying to determine. (see below)
Jack had been a patient at the UMass Pediatric Infusion Unit for two years and in August of 2012, the infusion treatments were discontinued, for the time being.
Jack started this fundraiser because he knew what it was like to sit for hours in the infusion unit, receiving medication and not being able to leave the unit. The unit has some activities for the kids, but Jack felt that they were not plentiful and outdated. Jack wanted to raise money to be able to buy more items for the Infusion Unit so that “the kid’s time there is more enjoyable”. He thought he could start a fundraiser and buy new movies, gaming units, new games (x-box, PlayStation), buy some cuddle puppets and things of the like. He came up with this idea on his own. We are so proud of him. This fundraiser has been an especially bright spot and great distraction for Jack during a very difficult period of health. He is filled with so much excitement in anticipation of what he can do for the kids that are patients in the infusion unit.
So much has happened since we started this campaign. Jack's health has been declining. His pulmonologist has assembled a team of specialist from Boston Childrens Hospital (Immunology, Cardiology, Hematology, Hepatology, Neurology, Pulmonology, Rheumatology, Endocrinology) to "cast a wide blanket" and try to determine what is going on with Jack. In October he had a lung biopsy, liver biopsy and bone marrow biopsy. The results were not positive, but it did yield some information. His lungs and liver have permanent fibrosing and damage, there were signs of pulmonary hypertension and everything showed alot of inflammatory cells. After the biopsies he was re-admitted to the hospital because the biopsies were so poor. They were going to start some i.v. medication, but three days later, his liver blood work showed a slight improvement. Since then Jack has been on a merry go round of numerous appointments, weekly blood test and procedures until they can determine what is wrong with him.
I began by updating family, friends and supporters through this site, but for the past few months have started using Caringbridge, which you are welcome to visit. http://www.caringbridge.org/visit/jackpullman1
What Jack Has...
These are the diseases that Jack currently has: Bronchiolitis Obliterans, Bronchiectasis, Pulmonary Interstitial Glycogenosis & Eosinophil Esophagitis. He also currently has hepatitis (just means inflammation of the liver) and they currently believe that he has a rare form of Hypereosinophilic syndrome.
Pulmonary Interstitial Glycogenosis...http://www.child-foundation.com/education/PIG
chILD Foundation (Children with Interstitial Lung Diseases)
chILD Foundation Mission
The Mission of the Children’s Interstitial Lung Disease Foundation is to provide support, education and hope to families affected by a pediatric interstitial lung disease and to advocate and raise funds for scientific research. In2012 77% of donations will be dedicated to research.
What started out as a simple fundraiser has transformed into so much more. It has provided Jack and his family with so much love and support. It showed us how kind, generous and supportive people are. As Jack goes through one of the most difficult periods of his life, this has allowed him to dream big. Jack was able to attend the chILD conference in San Diego in June, which became a life changing experience for our whole family. He has already been able to provide some joy to kids like him going through extended hospital stays and hard times.
It has become an inspiration to our whole family. Jack and his family would like to start a foundation in the future to help children going through difficult medical times, to be able to bring them some sunshine during very tough times.
Thank you for visiting us, reading all this and we do understand that not everyone is able to donate. Just some warm wishes or prayers for Jack will do just as much.
Jack Pullman and Family
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